Hi nurse7409, Welcome to the forum. You will find there are many caring people at HW.
I post on the Fibro Forum and here on the Lupus Forum. I an so sorry you are going
through this. It does take some time to absorb all of this and can be overwhelming.
It is nerve racking waiting for test results.There are so many symptoms that overlap with the ConnectiveTissue Diseases. It is not uncommon to be first diagnosed with one thing and then another. Being patient is not always easy.
I see your doctor has put you on a prednisone taper, that should help with the inflamaton.
It is good that your doctor has started treating symptoms.
Do what you can to alleviate stress, stress will cause more pain. Gentle stretching and
walking helps. I do relaxation therapy doing deep breathing exercises.
I have Mixed Connective Tissue Disease, in my case Scleroderma, Lupus and RA. I am
taking Methotrexate to help slow down the progression of the disease. It took awhile to
get my dx. Repeated bloodwork showed positive RNP and I had a skin biopsy confirm
Scleroderma. MCTD is the only CTD that can be confirmed with only one positve antibody.
RNP in high titres.
One of the reasons it take so long for a dx is that antibodies wax and wane. There are
also some of us who have never presented with a positive ANA, I am one of them. My
Rheumy uses the ANA 8 ELISA Method of testing that is able to detect multiple antibodies.
Some Rheumys check ANA and if it isn't positive they do not do further testing.
Good Luck to you, take one day at a time. Come back to ask questions and keep us
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative
Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins