Posted 12/20/2009 10:06 PM (GMT -6)
Its good they make sure that its not something else, and find out exactly what is going on, even though it is frustrating. I try to remember that as it took me 13 years to get a sjogrens dx, and there is more going on, my family doc lists lupus. Even if lupus isn't totally perfect fit for my Ai problems, it saves me having to remember what all is wrong with me and list it all, since most of it is sort of common in lupus patients. Thething I hate most about AI disease is the brain stuff. I amconstantly making mistakes, misunderstanding, forgetting, and complex mental tasks that used to be my thing, are now dreaded and avoided.
Prednisone helps this. You are on a short taper, you probably know this, I usually taper out over a month or two. Sometimes my electrolytes get messed up on short tapers. I have to be sure to not drink too much water or too little and keep gatorade on hand and drink it if I'm really going through the water.
Its nice to meet you and I hope that all goes well with your doc and you get relief soon.
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids