As of right now, I'm only going to my GP and rheumy. I have a question, though.
If they find other things going on or other symptoms will they refer you to a doctor of a different specialty automatically?
I have told my rheumy in the past about an increase in headaches and migraines and she said well let's watch it and if it gets worse I'll refer you to a neurologist. She also said she has no idea why I'm having the headaches I'm having (hence the pending referral to the neurologist).
I have had headaches almost everyday for the past week that haven't gone away with any of the over the counter meds I have been taking. I've also felt kind of spacey. Also, a few times upon getting out of bed or up from a chair, I have noticed a fuzzy-headed, pressure. Almost like someone pressing from inside as well as outside my head. When this happened, my ears also felt like they had pressure (almost like I was in an airplane). I know this sounds odd. I think so, too. I'm just not sure what to make of it. Could it be med related and not necessarily related to my UCTD?
I've read about the lupus cerebritis, but I'm not too sure what that entails. It usually seems kind of extreme and I'm not sure how mild the symptoms can range to.
I'm sure I sound like a hypochondriac, but it's just a weird thing that's been happening and the headaches are just frustrating! My family isn't sure what to make of any of this UCTD stuff since it started and they keep saying that I must be concentrating on things too much. They keep saying we don't have lupus in the family, so it can't develop to that.
Anyway, any kind of response would make me feel better. Any experience with anything similar?
P.S. I'm also kind of nervous because I'm supposed to fly home (New Orleans) from Colorado tomorrow and I'm worried the pressure will make these headaches worse or the stress of everything will make me flare....any tips?
Diagnoses- UCTD 2009, ovarian cysts 2008, asthma 2001
Daily Meds- Plaquenil, Prednisone, Vitamin D, Wellbutrin, Glucosamine Chondroitin