Oh wow..where do I start, colitis thread or lupus thread..I usullay post in the colitis threads because thats what I was diagnosed with so I have had real probelms with GI....I have tried several other drugs including 6MP, Azathiaprine, Asacol, etc etc and after around 6 months they stop working .....so back in July 2000 I decided to take part in a drug trial for vedolizimab for colitis /chrons ....
I have recently (2 months ago) had a drug reaction of some kind and ended up with a malar rash or similar on my face. They are checking for Lupus SLE ..as I have many of the symptoms......I have had suspected ankolysing spondalitis years ago which strangly went away, I had psorisis on my hands and feet for years ..but it went away a few years ago and never came back... I have the HLAB27 gene. My mother has all the other arthritis type symptoms as well as kidney problems, cold joints, pain, tingling, we both suffer from extreme fatigue...... Sorry to vent but this is all so very confusing.
38 year old female
UC - Diagnosed 2006
4 x Asacol
100mg Mercaptopurine (6MP)