This will pass..I know how much it feels as if it never ends. I am sure you have been in this place before. I too have spent almost a full two years in full flare up mode and eventually it passed. I try to appreciate the moments of life...because we here know how soon it can change. I am hoping it changes for the better soon for you too. I can also relate to all the body systems being okay enough..but the illness just being so bad I can't function. This is where I was when I finally made the decision to try methotrexate. It has so far changed my functioning level to the point where I feel like I have my life back..but guess what? I still don't cook anymore :( I have learned what I had to give up in order to keep what I really need or cherish.
love and big hugs to you!
CTDU/Probable SLE- Peripheral Neuropathy, Partial Complex Seizures, Severe and chronic joint pain/fatigue, Sun sensitivity, butterfly rash, vitamin D deficiency, skin rash in sun, Skin rashes, mouth, lip, nose sores, Hair loss, head sores, some muscle pain, Muscle cramps, Vascular: Raynoids syndrome, Hx of Pericarditis x 4, Severe Dry mouth, persistent, Thyroid Disease, hx of moderate asthma, lung inflammation at onset of illness, hx elevated RF, recent protein serum elevated. No positive ANA yet
Methotrexate, 2.5 mg (4tabs 1x a week) Folic Acid (1mg daily), Plaqunil 600mg day, Topomax 200mg day (neurapathy), Ultram 100mg (prn) pain, flexaral, pm for feet cramps, Synthroid .50 micro, estrogen patch, lexapro 5mg, (mild anxiety),
~nothing is impossible~