John's Hopkins

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Regular Member

Date Joined Dec 2009
Total Posts : 26
   Posted 1/2/2010 10:04 PM (GMT -6)   
Hi everyone and Happy New Year to all of you!...I hope you are able to achieve all your goals.

I was just wondering if anyone has gone to John's Hopkins...I am considering making an appointment there and would love to hear any input anyone can give on this hospital. Thank you!

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 1/3/2010 1:28 PM (GMT -6)   
JH is one of the premier places to go for rheumatology and neurology.  I know many people with myositis diseases like I have that have gone there because it is the only dedicated Myositis clinic in the world.  They are also very experienced treating other AI diseases like lupus and I would not hesitate going there.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

Regular Member

Date Joined Dec 2009
Total Posts : 26
   Posted 1/7/2010 6:25 PM (GMT -6)   
Saw my PCP today....she is making me an appointment at JH...I can't wait!!

Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 1/10/2010 10:19 PM (GMT -6)   
I am currently a patient at JH. I started going there last year when my "mysterious symptoms" pointed to Lupus. I was diagnosed back in nov before the new year. I hope your visit/care proves well. I have had a great experience w/them so far,although they seem to be having a hard time understanding my symptoms outside of the skin & joints. = recently started seeing a neuro there as well. Take care and good luck! keep us posted :) -Brittanee
*Lupie Britt*
Plaquenil- 200mgs x2 in the mornings; Naprosyn- 500mgs twice a day; Flonase Nasal Spray- twice daily; Dexamethasone Nasal Spray- 3 wk intervals; vitamin- once daily; Prilosec- 20mg twice daily; Neurontin- 600mg twice daily; Cymbalta-60mg daily; Dexamethasone suspension for ulcers;  excedrin migraine- as needed.

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