Tired of being tired

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New Member

Date Joined Jan 2010
Total Posts : 5
   Posted 1/12/2010 9:28 AM (GMT -6)   
New to your forum. I have had lupus since I was 18 they believe , am now 54. I know I should be positive but I think I used that up years ago. Yes I was the person who no believed, it was all in my head, hypocondriac, depression etc. etc. How I hated dr.s back then. I learned to love my remissions over the years ,and to anticipate there end. New drugs , new dr.s, but no cure. I have never had a positive blood test , but every symptom listed is me. I do not drive unless someone is with me to take over when fatigue hits, which is often.
Why am I writing ? I have had a good life overall ! tongue  Great kids and VERY  supportive husband. On the days I just want to die because I have had enough of the merry go round they remind me of the truly important things I would miss.
    Hang in there everyone !!! No one promised life would be easy

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/12/2010 11:31 PM (GMT -6)   
Hi hun! welcome to the forum. I'm glad to hear you have a supportive family. That's half the battle. I'm 52 my husband is past away and my son lives 1000 miles from me. I haave to admit sometimes I would like to have someone to snuggle with and hold me up when I am down.
But we all seem to have that little extra strength when we need it and if we don't we have friends here that will pick us up when we are down. I just wanted to say a quick hello and I hope to get to know you over the months to come.I'm sure others will be around to welcome you. You kind of snuck in. You might want to change your topic to "new here" so it catches peoples attention.  all you have to do it go back to your post and click on the pencil and it will let you edit. of course you don't have to but it gives people a chance to welcome you.

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.

Post Edited (okie) : 1/12/2010 9:39:27 PM (GMT-7)

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 1/14/2010 2:52 PM (GMT -6)   
Hi and welcome sorry it took so long for me to answer you. I am 32 and have had lupus since I was 14 near as we can figure. I was diagnosed at 28 almost 29. I was told it was all in my head for years because my blood work is always negative. But I fit the criteria and then some. I understand being tired of being tired. I don't drive more than 20 minutes from home and never go over 45 anymore. We just bought a smaller car to replace our van because I was having problems. I hope others come to welcome you soon. It is nice to see someone have such a positive attitude after being ill for some many years. I try and stay as upbeat as possible but have bad days where I am really down. I recently heard I have kidney involvement so I am in one of my down periods and thought writing to you might help lift me back up mood wise. I really hope you continue to have a good life. I too have a very supportive husband which is more of a blessing than I think we really understand given what I have heard about some husbands on here.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

New Member

Date Joined Jan 2010
Total Posts : 5
   Posted 1/14/2010 3:20 PM (GMT -6)   

   Good luck with the Kidney problem. I understand what your going through. My kidney and liver seem to take turns with infections. A good time is when they BOTH shut up and no more antibiotics and blood tests for a month.

  I'm glad you have support. I would like to say it will get easier but that would be so not true.I've been through the strokes,  heart attacks , chronic infections, and lord the sleep I've missed because some new pain was happening in some new place. lol

        I'm here today , tomorrow is up for grabs

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 1/14/2010 8:37 PM (GMT -6)   
Hi Mommage:

Welcome to our forum, you'll meet a lot of great people here. I can understand your feelings of being sick and tired of being sick and tired. I hope that your kidneys begin to improve for you soon. I'm glad that you've had such a good life, even tho you have lupus. Just wanted to say hello and I'm looking towards learning more about you.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

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