New to your forum. I have had lupus since I was 18 they believe , am now 54. I know I should be positive but I think I used that up years ago. Yes I was the person who no believed, it was all in my head, hypocondriac, depression etc. etc. How I hated dr.s back then. I learned to love my remissions over the years ,and to anticipate there end. New drugs , new dr.s, but no cure. I have never had a positive blood test , but every symptom listed is me. I do not drive unless someone is with me to take over when fatigue hits, which is often.
Why am I writing ? I have had a good life overall ! Great kids and VERY supportive husband. On the days I just want to die because I have had enough of the merry go round they remind me of the truly important things I would miss.
Hang in there everyone !!! No one promised life would be easy