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Regular Member

Date Joined Apr 2003
Total Posts : 104
   Posted 1/12/2010 4:28 PM (GMT -6)   
Has anyone heard from Barb lately? I talked to her in chat last week and she said she was in a bad flare and was afraid she would be hospitalized again. I was just wondering if she is ok.
MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 1/12/2010 5:54 PM (GMT -6)   
Donna, just this morning I was wondering about Barb. Carol (Okie) talks to her on a regular basis. Carol, what do you know about Barb?
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 1/12/2010 6:28 PM (GMT -6)   
Barbara is still hanging in there and avoiding the hospital...she's had to deal with the dentist and has a dr appointment this week so maybe there will be an update after that. (I just talked to her a couple of hours ago.)

Be well, Barb!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/12/2010 11:35 PM (GMT -6)   
I talked to Barb yesterday I think it was. Anyway it was the past couple days. She was out at the mall with nikita looking for a dress for some special event she was going to. Nakita was pushing her in the wheel chair which I'm sure was a huge help for barb to get around with. Anyway I just spoke to her for a moment because I didn't want to interupt mom/daughter time together. As for the rest lynnwood got ya caught up.

systemic sclerosis,scleroderma,sleep apnea, anemia, COPD

 But those who wait on the LORD will find new strength. They will fly high on wings like eagles. They will run and not grow weary. They will walk and not faint.

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 1/13/2010 11:05 AM (GMT -6)   
Hi Donna, Pat, Lynn, and Carol:

I'm sorry I've been MIA as of late but I haven't been doing to well. I had to go out to the mall last weekend to help Nikita get shoes and a cocktail dress she was going to a party. I'm so thankful that Nikita isn't put off by having to push me in my wheelchair. I guess she realizes the only way I can go to the mall is with my wheelchair. Anyway, she looked beautiful and I'm so very proud of her.

Yesterday, I went to the dentist to have a filling replaced. I lost the filling on Friday last week and according to my dentist it was totally gone, no wonder why I had a toothache. As for the rest of me, well I'm not feeling to good, I guess that's part of why I've stayed away. I can't say anything good about my condition and I feel like you must be sick of me fussing all the time. I've cut my steroids back and boy am I feeling it, I'll see both my Rhuemy and Internist next Wednesday the 20th. I hope they have some kind of an option for me. I'm weary and just so sick of all this, all I want is just one day of feeling well, just one, am I asking to much?

Thanks for thinking of me and I miss you all. I hope you're doing better and feeling fine. I'll let you know what the doctor says next week. Take care and try to be well.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 1/13/2010 3:13 PM (GMT -6)   
Barbara, I am so sorry you aren't feeling well but don't stay away just because you don't have anything good to say. We worry about you when you disappear.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 1/14/2010 9:53 AM (GMT -6)   
(((((((Barbara)))))))) You do not fuss too much...that's my full time job!!! :0) I'm sorry you aren't feeling well. Let us know what the docs say. I'm praying they find a way to help you!!!
God Bless ya, Judy

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 1/14/2010 10:10 AM (GMT -6)   
Barb, sad you never seem to have a good day. I'm sad for you. I hope your doctors come up with a miracle that will give you some relief, even if temporary.


SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

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