Gosh can I relate to your anguish around the drug therapies. I've been on prednisone since last March when I was first diagnosed with Lupus and I definitely feel relief with it's daily usage. My rheumy wants me to get down to alternating it to 5 mgs every other day, but I just don't seem to be able to do it and I worry about the long term effects of the drug, but I also have to weigh the pros and the cons like Ginny said. I want to live my life without having pain and discomfort on a daily basis for however long that may be and I think that's where we all go with the drug paths that we take. You have to decide if you are willing to take the chance of longterm side effects versus the quality of life that you have. For me, I don't think that any of us deserve to live in pain and discomfort daily and miss out on the joys of what life has to offer. Ginny, you said that you have been on it for 10 years? What dosage(s) do you take daily to keep your symptoms in check. I know that we are all supposed to take the minimum that we can but I seem to get the most relief with 7mg a day and everytime I reduce it I am pretty much miserable with the joints. Good Luck Britt with your decision. Keep us posted.
Hanging in There,
DX - lupus and carpal tunnel snydrome
RX - plaquenil, prednisone, anti-inflammatories, prometrium and cenestin ( hormone therapy), darvocet as needed, fish oil, flaxseed oil, calcium, vit d and other vitamins.