Hi JoAnn - Thank you for that specific info on the testing process for Lyme. I did have the ELISA done (via PCP) about 5 or 6 years ago, which was negative. My current rheumy told me 3 yrs ago that there wasn't a good lab anymore for testing and it became a moot issue w/ her. I guess I should have persisted (and found my spine).
If I did contract Lyme - I'm sure it would have been with the onset of all my troubles in 1997 - and the little bit of research I did do a few years later, didn't speak very positively about effective treatment for "chronic lyme". Perhaps things have changed?
The darndest thing is that when I got so sick in '97 and the docs couldn't seem to figure out what the source was, my mother begged me to get tested for Lyme disease. I probably mentioned it to my doctor - but it didn't go anywhere - and even I thought it was a bit "out there". Anyway, a million years ago when I was pregnant, my mother announced she was going to insure me with Lloyd's of London ..... apparently there was something about a twin policy....if purchased early on with no indicators for twins, and you ended up having twins - Lloyds of London would pay for everything. My husband and I didn't have health insurance at the time. There were no indicators and absolutely no reason to consider the possibility of twins. My mother is a class A worrier and we all kind of laughed at her and she never went through with it. And then...you guessed it....twins!!!
Now, why do you suppose I didn't listen to her in '97!? I'm still kicking myself for being such a dunderhead. Lesson is....always listen to your mother. Especially if she has a track record to back her up
I am seeing a new rheumy in March. I wonder if it's even worth bringing up at this point?
Good Luck, JoAnn - it would be fantastic if the treatment resolved even just some of your issues!!! Keeping fingers crossed and keep us posted!
diagnoses: mono 1972; postviral CFS 1997; fibro 1998; UCTD & osteoporosis 2007; celiac 2009