Hello Everyone, I'm here to rant about
my Rheumy yet again. This is the same guy that took me off Plaquenil and Imuran saying he's not convinced I have an inflammatoy condition, which sent me into a huge flare. horrible fatigue, pain and hives from head to toe. Here's the run down: I had hives, huge itchy red welts that would burn right down to the bone, then fatigue that was written off as a symptom of being a mother of two boys, then the joint pain in my hands started, gradually getting worse, my hair falls out root and all, but grows back in only much thinner. My joint pain is now in my feet and starting in my right hip. I get migraines 2-4 times a week, my eyes twitch, I get migraine halos, I get a red rash on my face when hot, in the sun or emotional. I'm so tired that the only thing that allows me to do anything is the slight kick I get from the Lortab 10's I take 4-5 times a day. I've got a new PCP and he's really smart, but I'm worried about
what my dummy rheumy may say to him. I had an MRI of my left hand last week. Yesterday the Rheumy's nurse calls and says that he doesn't think it's inflammatory and to continue Fibro treatment. I'm not on any Fibro treatment because none of it did anything except the Lyrica made me completely numb during sex. I have less pain and more energy when I take 10-15mg of pred a day, but the Rheumy has me tapered down to 5mg and wants me off it all the way. And of course everyone complains about
the amount of pain meds I take, even though I've had reactions to Ultram and all NSAID's. When I asked about
the positive(speckled pattern) ANA and the high positve RA factor, he tells me that it must have been a false positve. I've had it run at least 8 times and only once was the ANA negative and that was when I was on Imuran, the RA has always been positive. I think this guy must be nuts. Now I'm having the migraines more often, cognitive difficulties, have had two episodes of muscle weakness in my legs so bad I couldn't walk, can anyone say CNS involvement? Aparently my Rheumy can't. At least my PCP is sending me to a pain clinic in two weeks and to a nuerologist March 3. Hopefully, I can get good enough treatment through them that I can tell this goodbye once and for all. My Rheumy options are slim. If they take my insurance, they are two ghours away and either not seeing new patients or as one told me not taking new Fibor patients(this was based on dummy's notes). By the way, I don't have and have never had any of the Fibro points and my PCP agrees that is the wrong direction. I wish this was something that I could just say forget it and move on, but I know I need treatment and good treatment. I do have a wonderful threrapist that is so nice and understanding and reassures me that I'm not crazy or a drug seeker as my last PCP tried to accuse me of. I guess that's it . Thanks for the rant space, it really felt good. Take care and God Bless you all for your understanding ears.
PCP pretty convinced- Lupus , Taking plaquenil,Propranolol, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab. Prednisone 15mg daily added 03/09. Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.