Hon, we are glad you found us here. That in itself says so much about
your strength. You know, I think it's ok to give up once in awhile! But just for alittle while, Like, today, between 2 and 3, and maybe even tomorrow, too. Ask Allison to help you plan something really fun for your Official Giving Up Day
. Like a pedicure, or a (small) bag of popcorn, or pick a day when you can plan ahead with your family for a Giving Up Day to do something you really, really wish you could do, send invites, mark everyones calendar!!! Maybe host a soccer game where you get to kick all the goals you want to. Yeah, I know, it's not the same, but maybe it would be a way of letting your family and friends support how you are feeling. Like you really do feel, more days than not. And that's ok. We all get sick of being so sick. Each one of us here knows much of what you are going through. We are young and old, moms, kids, friends.
Your friend Allison can share some of it, but to know Lupus, you gotta live it. Every day, the good with the bad. Life is all about
balance, and too often our days are in the dumper. Lupus used to be one of those terminal diseases no one knew enough to even talk about
. And now, early diagnosis and treatment means we can live with it. And on some days, better than others. And research and taking our meds today, means in the near future, treatment options will be better and our life with lupus will be better. So know that you are not alone, and keep us posted.
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.