Posted 1/29/2010 3:22 PM (GMT -6)
I think this is more a matter of no one knowing what to say. I have am idea of who we need to reply to you but it is an older gentleman who isn't online as much as the rest of us. I wanted to let you know we have read your post and do care. Also you need to give us some time. I personally have no experience with what you are describing. I have had to crawl before but that was because of pain in my spine not from not being able to feel my legs. I would tell you not to worry, but that is a mother's job and I know it well. I hope that someone comes along who can help and soon. I know how scared you must be right now. Antiphospholipid antibodies can be an indication of a tendancy to form clots but it is treatable. Beyond that I do not know what I can say that might help except that we are listening and hopefully someone with some experience will come online soon.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence