A couple of years ago my son was crawling on the floor when he woke up (he was 11, so that was unusual)
I asked him what he was doing and he said I cant feel my legs. I took him to the emerg where he was admitted. He spent almost 2 week in the hospital on an IV taking steroid's. They did many test's. It came back for Myositis. Well in happend again a few months ago. He once again could not use his legs.
We are now seeing a rhumatologist, neurologist and a metabologist. They did some blood work and they called me yesterday and said his Antiphospholipid Antibody was abnormal and they want it repeated in the middle of may. What does that mean? I do have a cousin with Lupus and I do speak to him alot about what my son feel's, these are some of my son's symptoms:
He had myositis 2 time's to the point where he could not walk
He get myositis in his calves alot but able to walk except those 2 times
He has headaches almost every day
He get's joint pain
When he does get the myositis in his calves it is usualy after he is sick with flu or a cold!
He is going to get tests done on his heart to see if it damiging the muscle
Anyone experiance this...? I am very worried as my cousin is not doing well and I am scared my son may have this, he is only 13!