I hope someone can jump in here. Thank you in advance!
Last year out of NOWHERE I began having horrible muscle/joint pain. EVERY muscle! Calves, thighs, lower AND upper arms, shoulders, neck. ALL joints, Fingers, wrists, feet & ankles. If I poked myself on my body it hurt! Crossing my legs hurt! The pain lasted 3 months, Intensity changing but not going away until after 3 months.
This time I had a week of low grade fevers
I had a bone marrow, CTs to check for Lymphoma, EMGS to check for muscle damage, MRI to check MS.
My Dr ran all bloodwork
which was negative.
CBC w/ differential
I saw a Rhematologist ... said all the bloodwork
was normal, did not suspect lupus
. Thought it was possibly from being on Crestor
. I had stopped the Crestor
at the onset of this muscle/joint pain 3 months earlier. My Cardiologist
at the time said he DID NOT think it was Crestor
because after I stopped it, I still had pain for 3 months (A long time in his opinion to be as bad as I was w/ the pain). Besides, the pain did not diminish daily. It just changed intensity. One day AWFUL, One day tolerable, the next not so bad, then HORRIBLE, ect....
The Musclepain got so bad I went to the City to be checked for ALS.
(After 5 months, when I was 2 months Pain free, I went back on Crestor
) It is for choloesterol.
Ive been back on it for 9 mo's. January 10th (Nine months after starting the medicine again) I AM back with HORRIBLE Muscle/joint pain! Same exact
, again DOES NOT think its the Crestor
. IN FACT he said its IMPOSSIBLE. After all 9 months, I was fine & AGAIN, Ive been off it 3 weeks already..I have stopped it & went to a Rhematologist here in NY who does research for Lupus
& spent an extensive amount of time w/ me.
She repeated the EXACT same bloodwork
& feels its not Lupus
When I questioned her about
last years episode, appearing to be a flare, then 9 month remission & now again, a possible flare.........She explained that it is REMOTELY possible but nearly impossible for SOMETHING would likely have shown up on the blood.
I asked if its possible symptoms are here before the bloodwork
& she says in most of her research, its opposite. The ANA, ect will actually be possitive before, even years before.
HELP! Please! Your thoughts are priceless!
Would I have other symptoms?
cause this type of Muscle pain
or just the joint pain? (When my son leans on me, it hurts!!) My joints are NOT swollen, just hurt, :-(
Has enough bloodwork
been done to eliminate Lupus
For those of you who were not Diagnosed right away, is that because only partial bloodwork
was done, IE: ANA but no SSA/SSB, ect?
Bless you all! Thank you for taking the time to read!