Okie - I surely hope you feel better very soon. Prayers going out that you don't land back in the hospital - unless of course, that's where you need to be. I still don't know how you manage to keep your cool!!!
JoAnn - I have heard a variety of things about ANA, so I guess it depends on which rheumy you're talking to. Here goes:
ANA, once identified as positive and part of an autoimmune disease process, doesn't need to be continually tested for because it is not an actual indicator of disease activity. As in, it might be high when you aren't feeling so bad, or lower when symptoms are driving you crazy.
Treatment with Plaquenil and immunosuppresants may alter (modify) the ANA .
A positive ANA is an indication of autoimmune process, NOT fibromyalgia.
A positive ANA might simply be reflective of Fibromaylgia.
If you have two negative ANA's following years of positive results, you no longer have a connective tissue disease.
The first two statements I believe to be valid and easily substantiated. The latter three come from the rheumy I've been seeing for 3 years and am finally giving up on. Too many conflicts. I understand your frustration. My ANA became negative one time recently, after a year on Plaquenil and switching to a gluten free diet for 6 weeks. It then reverted back to + 1:320 within 6 wks. Which is still better than the 1:1280 that I started with. What does it mean? Beats me.
Confused - welcome - and be prepared to have way more questions than answers for awhile. It's just seems to be the nature of the beast. Good luck and hang in there!