i don't know how anyone works a job with this horrible disease........i've been dealing with it for 8-1/2yrs & there is no way i could work a job.........i would get fired after they realized i couldn't b counted on.........there r some days when getting out of bed is more than i can do.........
The above quote was lifted from a post on Dinosaur's "Feeling pretty bummed" thread. The whole job problem is weighing incredibly heavily on me right now. And crstr described what's been happening with me just perfectly....I didn't want to hijack Dinosaur's thread, so I started this one.
My medical situation has been complicated by the fact that I've been diagnosed with Lyme disease besides the autoimmune stuff. At first I thought, "Cool, I'll take antibiotics then I'll be cured!" Apparently it's not that simple....if anything, my symptoms are getting worse. I'm sicker on the antibiotics than I was before. It may be temporary, or it may not.
I've been trying to continue with TWO jobs (anybody out there think that I've lost my mind??), but am beginning to think I will ultimately have to let go of both. Very soon.
I will let go of the part-time job first. My employer at my full-time job has been great and I can work from home most of the time. When I'm home I can rest when I need to rest and work when I feel OK, even if I end up working on the weekend or at 8 or 9 at night.
I've been working on stuff for both my jobs most of the day today (Sunday). What scares me is I think I will lose my day job eventually, even if I don't voluntarily quit....recently I had to give one of my assigned tasks to someone else, which I have never done before. It feels like the beginning of the end.
My double vision and vertigo are OUT OF CONTROL. I hurt all over, especially rib cage/upper back. It hurts when I take a deep breath or change position. My fatigue is constant and debilitating. I have to force myself to get up and get dressed most days.
And I don't know how long they will continue to let me work from home. I know that there are layoffs coming at work, in the next several months, and I just can't see them keeping me and letting go of someone who is in the office every day! I wouldn't keep me!!
The financial stuff scares me A LOT. I don't think we'll be able to make the mortgage payment on SSDI. I'm the only employed person in the house....hubby is full-time stay-at-home Dad for our adopted kids (biological grandkids, one is special needs).
Am I just scared of change? I've been unemployed before.....somehow I've always made it. Even if we had to move to a cheaper place, make lifestyle changes, what matters is staying together as a family.
Is it just that I've never had so much to lose before....?
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnelDoxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP
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