If It's not Lupus, I don't know what else it could be

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Regular Member

Date Joined Sep 2007
Total Posts : 36
   Posted 2/2/2010 4:55 PM (GMT -6)   
Hello Hello.  Back on the forum again, I'm afraid. I came here a couple years ago looking for answers, then made an attempt to just "forget about it" since that's what my doctor did.  I really thought my doctor would look into Lupus or conditions related to Lupus since my father (also a patient of his) has scleroderma (though he was first misdiagnosed with Lupus for years). 
I have looked everywhere, on my own, for the answers to what's going on with my body. Everytime it comes back to this. I literally wasted the day today crying over this nonsense-- I just don't know what else to do.
I'm a 3rd year college student currently studying abroad in Ireland for the semester. I hoped...I PRAYED that I would be lucky enough not to feel icky over here. But, of course, within a few days I was in my bed with my sweatshirt on and 2 pairs of socks shivering so bad it must have looked like a scene out of the exorcist. Not two days later my chest feels like its got a knife poking through it every time I breathe or move and especially when I ate.   So I didn't eat.  Took heartburn relief meds, really and truly hoping it was just awful heartburn-- nothing worked. I think things are getting better and my eye swells up. (this eye business befuddles me-- I have no idea how it would connect with Lupus, but it happens a lot when I'm stressed or about to get sick) I'm walking to class today and I had to sit down on the way over because I was out of breath....not that I was weezing or anything like that, I just felt like it was taking a lot of work our of me. These things happen all the time at home, but somehow it's more manageable when I'm at home. I've missed classes here already and I'm worried sick I'm going to have to miss more and not get credits.
I apologize for the length of this rant..I'm just very confused!! It isn't in my head. It's been happening since high school and I'm sick of my doctor dismissing me altogether!

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 2/3/2010 1:26 AM (GMT -6)   

Change doctors. You may find that you have to go through several docs till you find one who a) takes you seriously, and b) takes the time to try to figure out what's going on with you. These autoimmune diseases are a mess to diagnose, treat, and live with. Don't despair. Just do your homework, i.e. keep a list of symptoms and make sure you are set up for appointments when you get back to the US.

What lupus symptoms do you have? Have you read our Resources page at the top of the main lupus page? There's a lot of good stuff there. Tell us more about yourself and what exactly your symptoms are.

Don't give up. We'll be here for you and hopefully you'll find a doctor who will be too.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

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