I am having a re-emergance of my CNS symptoms. I am having a horrid time with school work as a result. I also keep having to delete and retype as I am doing this post. I am afraid, I mean I am on 20mg of prednisone and 150mg of Imuran what is left to do except raise the prednisone or add another med? I see the rheumy the 8th of next month and just don't know what to do in the meantime. I don't know him very well and am not sure how he will react to me calling and saying I am getting worse. I am having a lot of pain in my right knee too which is odd and my back is really bothering me again. I want to cry but all that would do is give me a migraine. I haven't said anything to hubby because I don't want him to worry too much but I am worried myself. I am failing one of my classes and am behind in another. I have never failed a class unless I just didn't do the work. Plus I have an assignment due the 11th and I haven't figured out how to do it since I can't focus long enough to read the chapters I need to read. I can't focus and that is the really scary part. It takes me 20 minutes to read a paragraph that should take 1-2. I just need someone to understand what it is like to suddenly feel the one thing you have going for you slipping away. I need someone to tell me that this can be fixed because it scares me. Plus I still haven't heard from the hemetologist about my blood test results. I find that scary. So many things are happening and something is wrong with me. So many little things started happening all at once and it is making me feel stress like I shouldn't be feeling. Plus I keep getting sick again. I don't understand it I went so long without a cold and now I keep running a fever and my sinuses keep acting up. I know it is the lupus. I am sorry to complain so much I know there are others in worse shape than I am and dealing with worse stuff it is just that my brain is the only good thing I have ever had and I feel like I am losing it.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence