I've found it's good to tell the boss, but make sure it's presented in a matter-of-fact kind of way. I mean, make sure you don't come across as a whiner or a slacker. Saying that you sometimes have difficulty with the demands of the job is fine, but make sure to offer ways in which you could be helped to be more efficient, or talk briefly about
the treatment and what you expect the future to look like.
Or you could simply ask not to be put up for promotion, just vaguely saying you have some health issues that prevent you from being able to work more hours. You may or may not choose to use the word "lupus", but in all cases I wouldn't go into a lot of detail. When I had to do this I focused on my fatigue and my need to schedule things a little differently so that I could support good health -- like making sure I took time for lunch, but demonstrating that I worked a little earlier &/or a little later to make up for it -- that kind of thing.
I didn't have it available then, but try looking at butyoudontlooksick.com
, find the article about
"The Spoon Theory" -- it might be helpful.
Hopefully you will be able to control your lupus soon and put some of these questions behind you. I worked a long time past when I should have stopped by pacing myself, but I know that isn't always an option.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde