What should I do?

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Regular Member

Date Joined Feb 2010
Total Posts : 138
   Posted 2/16/2010 12:44 AM (GMT -6)   
 When I went to the rheumy last he said he doesn't think I have lupus so he said no need to come back untill I have more symptoms. He said just go see my regular Doctor. Well I am getting worse and finding it hard to function much at all. I just saw him a month and a half ago. Should I go complain somore? I feel like I am waisting my time but I can't live like this much longer.shakehead

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 2/16/2010 1:26 AM (GMT -6)   
Hi Louise,

Can you see another rheumatologist to get a second opinion?

I'm in (almost) the same boat...my rheumy dx me with lupus in October then told me in December I don't have lupus! (?!?)

Anyway, he would probably kick me out too except that I also have fibro and RA, so he still has stuff to treat me for.

I'm planning to see another rheumy for a second opinion....I have an appt at the end of March (she's hard to get an appt with). This rheumy is supposed to be more lupus-oriented (my current doc is more fibro-oriented).

Good luck! Keep us posted!
Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate


Regular Member

Date Joined Nov 2008
Total Posts : 106
   Posted 2/16/2010 3:07 AM (GMT -6)   
For your own benefit and sanity ask for a second, third or more opinions until you can find someone to help you.

All the best

DX: IBS 00, +ANA 05, Depression 06, MCTD & Sjogren's 07, GER 08, NO Sjogren's 09, Fibro and all over tendonitis?????  
Life is what you make of it.  Just something I try to remind myself every day.

Regular Member

Date Joined Feb 2010
Total Posts : 138
   Posted 2/16/2010 5:15 PM (GMT -6)   
I will see what I can do. Maybe I should give him one more chance since now I have more symptoms. We only have 12 rheumy's in the state so I'm betting it may be difficult finding another. Thanks so much for your advise.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 2/16/2010 7:14 PM (GMT -6)   
I am so sorry your rheumy choices are so limitied. Don't you have a teaching hospital you could try?
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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