Barb's back in the hospital

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Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 2/16/2010 6:51 PM (GMT -6)   
I spoke with Barb today and she sounds like she feels pretty bad. Her doctor has switched her from Demerol to Morphine and since she has so many mouth sores that she can't eat, she's on a saline drip. Her doctor is the hospital doctor for the next two weeks and can take better care of Barb in the hospital. And Barb also said that the nurses are sweet and treating her well. She asked me to send everyone her love.

I, or someone else here, will keep you all up to date on Barb.

SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 2/16/2010 7:09 PM (GMT -6)   
I hope Barb feels better soon. It is too bad it had to get this bad. I really wish I could do more than offer prayers and support.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 2/16/2010 8:42 PM (GMT -6)   
((((( Barb )))))) I pray your stay in the hospital isn't long and that you start to feel better soon! Love ya
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid and Tramadol (as needed) and magic mouthwash ( as needed for mouth sores)

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 2/17/2010 7:02 AM (GMT -6)   
Oh No! Barb, I am so sorry! I hope your doctors and nurses give you the best care and you are not in the hospital for a long stay! Will be praying for you.

Thank you Pattylatty for letting us know

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 2/17/2010 7:24 AM (GMT -6)   
Hey Pat, Thanks for posting about Barb. I talked to her but You know how bad my brain fog is. Barb seems to think I am having allusionations.sad I didn't even know it was possible. Well between us all I'm sure she will be covered with prayers and good thoughts. Don't worry about how big the problem is just rejoice about how big our God is.
Barb you are in my heart and soul.
God bless
Lupus lung, maybe, scleraderma maybe, another A/I maybe, Hang nail maybe. COPD
meds to many to fit in my 10 lines. but last count was 28.

 Jesus loves you and so do I!

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 2/18/2010 8:46 AM (GMT -6)   
Bless your heart sweetie! When we spoke last you sounded like you needed to be in the hospital. I'm glad your doctor will be there to take care of you and I'm also glad the nurses are treating you well.

Rest and take care. I hope you are back home soon feeling much better. You are in my thoughts and prayers, my friend.

Love you, Babs

Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 2/18/2010 9:08 PM (GMT -6)   
Hi All:

I've been here since Tuesday and my blood counts have all dropped through the bottom. Hem/Onc doc was here to see me today and it looks like I'll have to go through another bone marrow biopsy on the back of my pelvis. They are so so painful and I hate having them. They hope to do them by tomorrow afternoon. My platelets are down to 41,000 they should be between 250,000 and 400,000 if they drop any more I'll be in danger of bleeding to death if I were to start bleeding anywhere.

They are trying to adjust my pain meds. So I'll be trying some new medications that may make me out of it for awhile. It's just between having the Lupus/RA/Fibor/Cancer my pain level is through the roof. Please pray what we're gonna try will work for me.

Hope you all are doing alright and I hope to go home in a few more days. Thanks for your prayers and well wishes.

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 2/18/2010 10:05 PM (GMT -6)   
Oh Barbara, my thoughts and prayers are with you. Philipians 4:13 is my favorite verse, "I can do all things through Him who gives me strength." One day at a time honey, one day at a time. Know you are prayed for. Hope you feel better soon!

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 2/18/2010 10:09 PM (GMT -6)   
Barb, I'm praying that your platelet levels recover as quickly as possible and that your doctors will be given extraordinary wisdom as they treat all of your medical issues and try to relieve your pain. Feel better soon!!

Lyme Disease, AIH, Hashimoto's, "lupus-like" CTD?, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 2/19/2010 1:47 PM (GMT -6)   
Sweetie, my thoughts and prayers are with you! Hang in there!! We love you!!! Judy

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 2/19/2010 3:39 PM (GMT -6)   
Barb, I had issues with my platelets last fall. They fell to 5000. 50mg of prednisone stopped the drop and actually turned things around quickly.

I sat at about 30,000 for a few weeks. Try not to worry. It doesn't get critical until you hit 10,000.

I'm praying for you too Barb. I hope you get home soon too.

Love ya,

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 2/19/2010 4:10 PM (GMT -6)   
The problem is, for Barb her current low *is* critical. This is because she has several serious issues besides Lupus (such as fibro, gastreopaersis, anemia, RA, and MDS (a serious form of blood cancer). Treatments for all of these prohibit any increase in prednisone for her.

Barb is in a very precarious situation where treatment of any one illness can cause another equally serious illness to become more active.

Her doctors are brainstorming like mad to find something that will be helpful overall, and specialists of all kinds are being consulted. Hopefully a viable plan of action can be identified shortly.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 2/19/2010 8:05 PM (GMT -6)   
I hope your doctors come up with something fast to help you sweetie. I'm sure you are in a great deal of pain with the bone marrow biopsy today on top of the other pain.

Hang in there my friend. We are all sending prayers and positive thoughts your way.

Love you, Babs

Regular Member

Date Joined Apr 2003
Total Posts : 104
   Posted 2/19/2010 10:20 PM (GMT -6)   
I am so sorry to hear you are suffering so much. Please know you are ever in my prayers and I hope your doctors can turn your situation around and give you relief.
MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
 Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Imuran, Crestor,Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.

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