My first disability hearing March 30th

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Date Joined Feb 2010
Total Posts : 31
   Posted 2/17/2010 2:54 PM (GMT -6)   
Can anyone give me advice on this?  And advise on what my mom can expect as my atty told me whe will be the witness used to testify.  This is what she has written and is going to say. 

My daughter Stephanie  has asked me to give two examples of physical and psychological effects of Lupus and depression and how it affected her life.  I literally watched my daughter change basically overnight.  From the time she was diagnosed with Lupus to the present is drastic.  I watched a happy go lucky young woman who ran a marathon one year to someone who could hardly get out of bed the next.   We enjoyed shopping, movies, lunches and time together on the weekends to her always cancelling because she wasn’t feeling up to it.  I watched her knees, ankles, feet, and hands swell up and her complaining about the pain constantly.  As her physical pain became worse her mental state did as well.  She isolated her self from family and friends and as a result she became extremely depressed.  She would literally stay in her room for days and do nothing.  Her room became her sanctuary as well as her isolation from reality.    

The psychological aspect of Lupus and depression goes hand in hand.  You really can’t describe one without the other.  As Stephanie’s disease took over her life so did the depression.  She would tell me that she just wished she could wake up in the morning and just feel “normal”.  I could talk to her on one day and she would seem fine and the next she would be crying uncontrollably about her feeling of despair, hopelessness, loneliness, and endless regrets, even suicide.  She would say everyone would be better off with her gone.  Do you know what that feels like when you are a mother?  Helpless.  I see her struggling to remember and more often than not repeating things she had just told me.  Her memory has been so damaged that she has resulted to writing things down so she can remember but forgets what she was suppose to write down.  She made cookies one day and it literally took her three hours just to put the ingredients together.  I can’t be certain if her brain damage is caused from Lupus or the seizures or possibly both.   

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Date Joined May 2005
Total Posts : 7725
   Posted 2/17/2010 6:04 PM (GMT -6)   
That sounds great! I said about the same things for my private insurance company as well as for Social Security and didn't have any problems getting things approved.

Are there any more physical symptoms besides the joints swelling that she can describe? Like the repeating things, the slowness in thinking, the forgetfulness --- those are cognitive (thinking) issues, not really depression -- so they can be grouped together.

Swollen joints, pain, brain involvement, depression -- ok.

Now think about adding other stuff if it applies -- any rashes, stomach complaints, hard to sit, hard to stand, back pain, headache, fatigue, insomnia, -- anything you can think of that will affect whether or not you can perform a simple job --

Best wishes, and remember those folks are just people too. My attorney told me to picture them all in their underwear and not be afraid.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

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