Lupus and donating blood?

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New Member

Date Joined Feb 2010
Total Posts : 18
   Posted 2/22/2010 1:33 PM (GMT -6)   
Okay, hate to flood the boards...but.

Should people with lupus donate blood? I remember I tried twice in high school to give blood. The first time I successfully donated blood, and felt fine for the "holding period" afterwards. I thought this was because I made sure to drink a ton of water and I stocked up on OJ that day to make sure that I wasn't "that girl" who passed out...but about two hours later after I was already back in class, I started feeling really woozy. My teacher told me I didn't look well so she let me lay down and I ate some of my packed lunch.. one of the girls in my class even ran back to the blood donation station and got more OJ and cookies for me.

In the middle of my next class, I passed out. Had to be wheeled through the cafeteria in the middle of lunchtime. WONDERFUL.

I was feeling gutsy about a year and half later and decided to donate again.... but had a lot of problems and eventually was unable to donate. My blood clotted when they first started trying to draw blood- before it could even make it all the way down the tube to the bag. So I volunteered my other arm. It started filling the bag but was running slow so they told me to squeeze the ball a little more often than usual.

about a fourth of the way into the bag all flow completely stopped. My blood had clotted... confused

This also made me remember that the first time I gave blood, it was a struggle for them to get the test tubes full at the end because soon after the bag filled, my blood started to clot and she had to clamp and drag what was in the tube line into the test tubes, just barely getting enough to fill the testing tubes.

Is this something lupus related or does anyone know what would cause your blood to clot abnormally?

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 2/22/2010 5:06 PM (GMT -6)   
Well Mel, if I had all those problems I would give up on the whole idea. Even though it is a nice thought. Some people have thick blood some have thin. I don't think it has much to do with Lupus.
I was just given blood two weeks ago because I am anemic. My dad's blood was to thick and had to be on blood thinners. confused .
Lupus lung, maybe, scleraderma maybe, another A/I maybe, Hang nail maybe. COPD
meds to many to fit in my 10 lines. but last count was 28.

 Jesus loves you and so do I!

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 2/22/2010 5:45 PM (GMT -6)   
I was told never to donate blood unless it was for myself. This was by 2 red cross stations, they said they don't want blood from people with autoimmune diseases.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

New Member

Date Joined Feb 2010
Total Posts : 18
   Posted 2/22/2010 8:18 PM (GMT -6)   
See, that's the weird thing, Redrose. I asked the red cross lady during the pre-donation tests for anemia and what not that there was a possibility that I might have lupus and she said it wouldn't hurt, that the only problem would be that it is a lot of stress on MY body... since in lupus the problem is mostly with antibodies and not red blood cells.

I dont really intend on donating again, I was just really curious of it was related...

Regular Member

Date Joined Feb 2010
Total Posts : 55
   Posted 2/23/2010 1:37 AM (GMT -6)   
I was told I can certainly give blood, even on meds. I'm a regular donor and have never had problems, but now I'm just waiting for my year to be up from spending time in the "malaria zone." Have you had problems giving blood for regular tests? Sometimes they take 13 vials from me, so I'm glad there's no problem!

New Member

Date Joined Feb 2010
Total Posts : 18
   Posted 2/23/2010 9:55 AM (GMT -6)   
pluslouie: It's been a while since I have had more than 4 vials taken at any given time, usually that hasn't been a problem... I'm not sure though if I start getting back up to taking 13 vials or so whether or not I'd have issues.. That's how much they were taking when I first got sick but I don't remember there being any problems... but then again maybe there were but it was at the beginning of me having weird symptoms so I didn't analyze everything so much...

Regular Member

Date Joined Nov 2008
Total Posts : 106
   Posted 2/26/2010 5:29 AM (GMT -6)   
In Vancouver British Columbia Canada you can only donate blood if you are not in an active flare or in remission on the Red Cross website. When I went to donate I was flat out told I couldn't donate blood or bone marrow. My Dad has a blood condition that needs blood transfusions and a bone marrow transplant I'm a match, but can't donate either.

DX: IBS 00, +ANA 05, Depression 06, MCTD & Sjogren's 07, GER 08, NO Sjogren's 09, Fibro and all over tendonitis?????  
Life is what you make of it.  Just something I try to remind myself every day.

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 2/26/2010 6:42 AM (GMT -6)   
I've never been able to donate blood because I had hepatitis as a child. So when I was working at the state capitol, and our local blood institute would have a capitol blood drive, I would donate my time to help recruit donors. So don't feel bad if you can't donate because of your autoimmune disease. You can still find a way to help.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta,

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 2/26/2010 7:08 AM (GMT -6)   
*coughs thank goodness I'm not the only pass out during blood person* I mean, hey your not alone. I been told I have courage and I'm totally insane to give blood. Why? Imagine a tough stick, rolling viens, collapsing viens, fainter, all in one. Kid you not, I was told that I was insane and had lots of courage. After the sixth try I was like c'mon you can get it in this time. I am on hold on giving blood. I'm storing up to tell my dr where to put it and I want my dad to have some of my blood who is in kidney failure. For those who pray,please keep my dad, retired Minister Ron, in prayer. He has only a 8% chance to live. He is in kidney failure, needs kidneys on transplant list. Was a sudden diagnoses.
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 2/28/2010 5:46 PM (GMT -6)   

Hi! Everyone,

It is my understanding, too, that those with autoimmune illness should not, and it was mentioned during a blood bank Q&A in one of my classes, that the lupus meds, like prednisone and plaquenil, are also a reason.



God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

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