I see the rheumy on Monday so I have some time to make decisions about
what I want to do between now and then. The thing is I am almost back down to 20mg prednisone, just a few more days at 25mg but the neurological symptoms are slowly returning- I have a near constant headache and my muscles are doing funny things to make it even worse. My muscles are spasming so hard that I can see it happening under the skin and it makes body parts jerk. I also have noticed I am having problems typing and reading again- not really bad but bad enough. The thing is I really do not want to be on more prednisone. So I was wondering if anyone had any ideas about
other options. You can see from my medication list what I am already on. I also seem to be having some kind of arthritis related flare as well because of the pain in my knees. I just want to deal with this and move on, it has already cost me a semester of classes and I thought we had gotten it under control. I just hate the idea of so much prednisone.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence