Another post about leg symptoms...theories and questions?

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Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 3/9/2010 4:39 PM (GMT -6)   
Ok so for those of you who have read my leg symptoms post, I was thinking back today to when I was first being tested and the positive results I did have. My symptoms included: -burning leg pain(which eventually spread to my arms bearing the same symptoms) -leg ache(widespread not just limited to the joints)...Lately before the burning started coming back with this pregnancy, I realized I have tenderness in my legs where I usually have the is that muscular in origin? I ask because I used to have elevated CPK's in my bloodwork. Not very high (200s-300s) and was tested for the neuropathy but the only muscular test i had was the EMG's. Could those alone be conclusive or should a biopsy be done? I had one biopsy done but that was to check for small fiber neuropathy. I am just wondering if now the pain all along has been more muscular than nerves and if the tenderness im experiencing is able to be considered a type of "weakness" and could aide in diagnosis....?? Because then that would mean that with CPK might actually mean something! lol Just a thought..please comment! -Britt

*11 weeks 3 days on March 9th 2010*

*Lupie Britt*- Epilepsy Dx: 2003 & SLE Dx: 2009-Expecting Baby # 2! :)-Current Meds:Plaquenil-200mg 2x/day, Keppra-500mg 2x/day, Prenatal Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day
 *10 weeks & 3 days today-03/02/2010*

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 3/9/2010 10:27 PM (GMT -6)   
It sounds like what you have is muscular.  Some cases of myositis (polymyositis or dermatomyositis) do have pain, swelling and a burning sensation.  I have PM and had it in all of my muscles. 
However, the pattern of weakness is usually distinct...symmetrical and is characterized by difficulty getting out of chairs, going up stairs, and raising arms over your head.  EMG is used by some docs to diagnose it but not all.  Cpk is not can have an active disease state with a low or normal number and yours were not high.  Lupus can cause similar problems but is usually not as distinct.
The only conclusive way to diagnose myositis diseases is with a muscle biopsy but your doctor should be fairly certain based on other symptoms and labs before doing that.  There are a number of other neuromuscular diseases that could produce symptoms like yours.
If your current doctor is not being aggressive get a second opinion but make sure the rheumy or neuro is experienced with AI diseases.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

Regular Member

Date Joined Jun 2006
Total Posts : 58
   Posted 3/10/2010 7:30 AM (GMT -6)   
 Hi , I to have been having the same problem in the legs burning when going up steps and hills , it started in the middle of last summer , and I walk my dogs everyday so it can't be muscle's just being used for first time . I seen nero find out I have anemia , she did emg and everything was normal . My pain feels like I am weak have to hold on and pull my self up stairs , but my legs are strong , it is really weird . well my back started giving me problems about a month ago and I have been in pt for that and my physical therapist said it is referred pain from my back . I brought it up to the back doc and he is giving me and mri to see . I have stenosis in the L1 and L5 that they can see on x ray . So I hope I find out where this is coming from , I know how you feel having this pain everyday and not knowing is even worse . Hope you find help soon tc hagd
Dx : Lupus , pernicious anemia, fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril ,vitam b12 shots ,  vicodin , as needed .

Regular Member

Date Joined Jun 2006
Total Posts : 58
   Posted 3/10/2010 7:43 AM (GMT -6)   
 hi me again sorry I just read my post and left out that the pain is not sciatica , it is really only at my thighs at the bottom of my butt that is what is weird . I do get epidural shots for somthing similar to sciatica for 3 years that pain goes down my left leg just to the knee they know that is coming from my L5 disc . Hope you find answers soon
Dx : Lupus , pernicious anemia, fibromyalgia , Meds : predasone 5mg morning and 5 at night , 400mg plaqunil a day , 400mg sulfazine a day , algeria , flexeril ,vitam b12 shots ,  vicodin , as needed .

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