Systemic Scleroderma, recently I have been having problems swollowing. My rhuemy says it is scleraderma so I guess I should pay more attention to what can happen.
I'm actually really scared when I'm alone and can't breath. With my lungs being so bad now I never know if I should try to get the food down with water or just try to cough. I have to breath through my nose and with breathing problems I don't have much to work with. I think one of these times I'm just going to choke to death. I don't mean to sound mellow dramatic but not having anyone to help me plus if it sticks in my throat I will get an infection more than likely.
I hate sounding like a baby but I really get scared. I decided to get off the xanax a couple of weeks ago. I taped off. I'm beginning to think I should have stayed on it. I am now more aware of just how sick I really am. I'm glad God gave me a sense of humor because I don't think I would have lasted this long without it.
and without you guys as a support team for me.
well I just had to get this off my chest. Barb said I should drink ensure because I don't eat much of anything. I wish I could lose weight. I only take 5mg. of pred. so it's not that. I mean if I'm going to starve I'd like to see some results.
love ya guys
Each moment of life is a gift of God. psalms 39:4