Rhuemy sending me to neurologist possible MS

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Apr 2006
Total Posts : 169
   Posted 3/30/2010 8:21 PM (GMT -6)   
Hi, I have an appointment next month with Neuro, I've beenhaving MS symptoms since
2007-8,don't remember right now.  I have fibromyalgia too. Does anyone here have Lupus and MS?.
This past Sunday, I couldn't get up from bed, my legs were soo heavy, this is still happening today. My pain was from waist area to knees first day, then second all the way down to feet.
I could barley walk, my behind hurt (dear HB), thought it was funny for a minute.
Today, I'm having less pain.
I do have other MS symptoms too, I pray I dont have it. I posted my appointment I had with my Cardiologist dr. in the Heart section.
Sorry if I'm rambling today

Veteran Member

Date Joined Mar 2006
Total Posts : 2608
   Posted 3/31/2010 9:23 AM (GMT -6)   

For a few weeks, earlier this year, I had trouble getting out of bed or getting up from a chair because my legs were so weak and hurt so bad. They got better once I started taking lyrica for fibro. I had to be there to believe it, because I had no idea fibro could be so debilitating. I hope what you have is from fibro and not ms. My legs, however didn't feel heavy, as your describe yours.

Good luck with your appointment with the neuro. I'll keep my fingers crossed for you.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 3/31/2010 5:59 PM (GMT -6)   
Hi Syl,

You're not rambling....you sound just like the rest of us here! LOL!

Just so you're aware of ALL of the possibilities, my neurologist thought at first that I had MS too, on top of my lupus and my fibromyalgia, but my MRIs have been clean. It turns out that I have Lyme disease instead, which can both trigger and mimic MS, lupus, AND fibro! Contrary to popular belief, Lyme is very easy to catch, even in your own backyard....you don't have to go camping or hiking to get it.

So at this point, my doctors and I *think* I have at least some of the autoimmune diseases I've been diagnosed with, but because of Lyme's reputation as the "Great Impostor", we aren't completely sure which AI diseases are real and which are Lyme. I'm being treated with antibiotics now for the Lyme disease, but it may take many months of treatment before I feel better (if I feel better). "Neuro-Lyme" is the hardest type to treat, so I don't yet know if I can recover completely.

You may want to suggest to your doctor that he also test for Lyme disease and B12 deficiency....?

I'll join with you in your prayer that you don't have MS! Good luck!
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


New Member

Date Joined Apr 2010
Total Posts : 4
   Posted 4/10/2010 1:54 AM (GMT -6)   
i have lupus and fibro, but my extremities are heavy too. how do they test for MS? i hope that you dont have it.


Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 4/10/2010 8:23 AM (GMT -6)   
I just finished going through testing for MS as well. My symptoms were 100% MS and we all (me and docs) thought it was MS for sure. But after an MRI of my head and spinal cord, MS has been ruled out. I had no lesions whatsoever in my brain or spinal cord.

There is blood clotting disorder called Antiphospholipid Syndrome that mimicks MS almost identically. I have this syndrome. So the doctors have concluded that the APS is the cause of my symptoms and not MS.

Google "MS and Antiphospholipid syndrome". There's quite a bit of information about the two.

A simple blood test will tell you if you have APS. It's a very serious disorder to have. If not treated with blood thinners, the risk of stroke or heart attack is high. I had a stroke in 2002.

I really hope you don't have MS. To have both Lupus and MS is just a cruel and unusual punishment. Let us know how you're making out okay?

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 4/11/2010 8:36 AM (GMT -6)   


Dx. with lupus in 2005, my rheumy made me see a neuro, who suggested I may have an unusual but not unheard of mix of ms AND lupus. Needed further tests, like a spinal tap, that I declined at that time as my recently started new meds, pred, neurontin and plaquenil had helped immensely and knowing would not impact my outcome or treatment plan. Under careful monitoring by my dr, my lupus has been managed until recently when I have had a year of being so sick, I am no longer able to keep working, much less walking well. So it isn't unheard of. But, I was first dx'd with APS after my 5 miscarriage, back in '93 and the neuro knew that it could, was, probably, might be connected! But he said, that's the difficulty with all these overlapping autoimmune diseases......(didn't have plaque on my MRI/MRA either)

God bless,


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 18, 2018 8:04 PM (GMT -6)
There are a total of 3,004,460 posts in 329,148 threads.
View Active Threads

Who's Online
This forum has 161739 registered members. Please welcome our newest member, pinky;spoorback.
268 Guest(s), 8 Registered Member(s) are currently online.  Details
logoslidat, Admin, 61Impala, FamilyGuy, CatskillsMelanie, three 5's and a jack, straydog, Buddy Blank