So Ive been reading other ppls posts & I am wondering if I need a new rheumy as well. I see a general rheumy at Johns Hopkins Hospital in Baltimore Maryland and I live on the eastern shore(3 hrs away)about
30 minutes from Salisbury.
First off,my rheumy is generalized..although her specific interests are in Scleroderma.
Secondly, I see her & she is still in fellowship so shes still learning the ropes. I see a neuro as well there.
All they want to do is treat pain(naprosyn,neurontin,etc) & my seizures(carbatrol b4 now keppra.) & plaquenil. they wont consider me lupus even though i have 5-6 of the 11 criteria. They say I have "UCTD w/features of SLE."
I am still having symptoms & am che.mically allergic to sunscreen so it makes it hard to be outside at all. I get rashes within in 10 mins from fluorescents,sun & even thru windows. I am now pregnant & things r a lil better I think because of the increased cortisol...
*Lupie Britt*- Epilepsy Dx: 2003 & SLE Dx: 2009-Expecting Baby # 2! :)-Current Meds:Plaquenil-200mg 2x/day, Keppra-500mg 2x/day, Prenatal Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day
*Due September 25th 2010*