back from dr. vit. d news and ekg

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New Member

Date Joined Apr 2010
Total Posts : 12
   Posted 4/7/2010 4:59 PM (GMT -6)   
ok the good news is....the ekg was the norm. then sent me to hosp. for an xray of my chest. heart is fine. but, i have scar tissue on my lower left lung. which he says is all my pain. so, heres what all i got today. the vitamin d, i am to stop and take over the counter d. he said some people just cant take it. i told him my bones felt like they were exploding! so thats the end of that junk lol. i am now on...nuvigil 75 mg 1 x a day, this is to help me get thru the day, keeps you awake so im not in bed all the time, it works pretty good too,.meloxicam 15 mg, for arthritis pain, buspar for my anxiety, and doxyicycline antibiotic for the scar tissue crap i guess.. i forgot to ask, and a shot of prednisone in the rump... my sugars are already going sky high! i feel awful i begged not to get that shot but he said as much pain as i was in, i had to have it. i was like feel mad, very mad...ready to pinch someones head off. is this cuz, my sugars are high..??? wow, this just isnt me...i feel so mad? like leave me alone and dont speak one word to me grrrrrrrrrrrr.on another note, my ana test was a postive for lupus, but  for me not to worry i was on the low end? wtheck does that mean?

New Member

Date Joined Feb 2010
Total Posts : 13
   Posted 4/7/2010 9:18 PM (GMT -6)   
do you mind me asking what the problem with Vitamin D i take the really high once a week dose and am curious...beyond the fact I am in constant lung pain and chest I never seem to know what the real problem is...besides a rheumy who says I have definative mixed connective tissue disease with lung lupus????????????????????????? sorry you seem kind of aggrevated! Kinda makes me giggle when I realize most on here are as frustrated, annoyed, and fed up as me!
Just diagnosed Mixed Connective Tissue Disease...March...all started 5 months prior

New Member

Date Joined Apr 2010
Total Posts : 12
   Posted 4/8/2010 3:53 AM (GMT -6)   
when i took my first does of 50,000IU, of vit. d, i was fine! i figured heck its a vitamin, never expected anything.. oh im to take this dose twice a week, so the second dose i took it, started out a good morning, i didnt feel that bad, except for my chest thinking it was like 4 hrs. later, it hit me, i started like 'going down hill?'' fatigue set in first, i felt so bad, then...the pain... the only way i can describe it, my bones felt like they were exploding! like  a real bad ache when you have a high fever? but twice as bad... shoot i went to bed, slept 3-4 hrs. straight. i made myself get up, the rest of the night was bad. but when i woke up the next day, i was ok. im just having real bad chest pains on my left side where they say i have scar tissue in my lower left lung. was your symtoms like mine?

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 4/8/2010 7:50 AM (GMT -6)   
High doses of vitamin D are potentially toxic.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

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