Hi I am new here...
My name is Jo and I have been diagnoised with SLE for 3 and a half years. I was just looking through the forum and came across this post so felt I wanted to reply as I have just had my 2nd baby.
My first pregnancy, I hadn't been diagnoised with Lupus, and they think that it was the pregnancy that brought it all on, that was nearly 6 years ago.
I was really scared about this pregnancy as it wasn't planned and I was on all my meds, and had everything under control, so I spoke to my doctor and consultant and they decided to take me off everything until I was 12wks pregnant then review it. I came off all the tablets... I was on losartan for high bp, Azathioprine and hydroxychloriquine as well as 75mg of asprin. The only thing I was allowed to take was the asprin.
To cut a long story short, I felt amazing after coming off these tablets, like a new person ! and when it came to my 12wk review, they decided to keep me off things as all my bloods were fine and I felt great....
I went through all my pregnancy without needing any of my meds, and have now got a 5week old baby boy aswell as a 5 year old son, and I am still off my meds and have felt great... They did tell me that pregnancy can shock your immune system back to "normal" again and you can go into remission. I am not sure if that has happened to me as my bloods still suggest I have SLE but I still feel great and although am tired with with sleep deprivation, it is nothing like the fatigue I had before.
My boys are both healthy and I would not be without them. I have never found it a problem looking after my 5 year old, when I was really bad at first, I would just sleep when he did, and as he got older, I would just go to bed around the same time as he did most nights.
I now know lots of people with Lupus and many have had children some having had flare ups afterwards, but nothing they haven't been able to deal with.
So if you really want to start a family, I would talk to your consultant, mine was great, and I was well looked after all the way through, like any illness or disability they is always a way round things and lots of help if you look in the right places.