Hey there Carol,
I'm on kind of on the same page as Ginny and Pat. I try to touch base on the forum periodically but life has been kind of crazy lately with my dad having open heart surgery and the weather has been absolutely gorgeous here in the south and after this horrible winter it feels good to be able to get outside and breathe in the fresh air. I'm fortunate that the sun doesn't really affect me all that much so I've been doing what I call "flower therapy" by getting my spring beds planted and my deck in order. Also, I agree that sometimes, even though we all have to live with this disease daily, we don't always want to be reminded about it and sometimes just need to have days that feel somewhat "normal". But also, I understand that this website has been a godsend for me and feel very blessed to have all of you there to talk to and get advice from when I need it, and I will try to do a better job to respond to others when they have posted a problem or just want to rant. I hope you are feeling better these days. Keep your chin up!!
DX - sle and carpal tunnel syndrome
RX - plaquenil, prednisone, lisiniprol, etolodac, darvocet when needed, hormones and daily vitamins