What has happened to the forum?

Anyway I have been able to get here a little more since the weather is a bit better. To my surprise I have never seen it so slow. . I'm not trying to be critical but I am very concerned. We have truly formed a bond over the past couple of years. To the new people you may come here and think it's a click but I'm here to tell ya what it is mutual respect. There are days when each of us needs to rant there are lots of questions and there is just needing someone to listen. Now here is the tricky part. When you have those feeling you should not be shy about posting and expecting someone to help you. The thing is no one is obligated to do that. So the best thing to do to help yourself is to respond to other people when they post. Most of the time we don't expect answers we just need somone to listen. This is an aweful disease and some of us if not most of us don't have anywhere need the support we need. Bottom line if you read a post and you have a tiny bit of energy in ya stop by and let someone know you cared enough to say hello. I have no doubt I would not be here today if it wasn't for the support I have gotten here.

I hope I didn't offend anyone. I care about all you crazy luppies out here and wish I could fix everyone.

blessings

carol

p.s. sorry mods if you think this is out of line and delete it I get it.

I just want to thank you from a newbie who's just at the beginning of my journey.

Your posts are always helpful, caring and inspirational  -- despite all that you have going on in your life.

Thank you for stopping in and making this journey a little easier to bear.

Hi everyone, I wanted to thank you for responding and not yelling at me. Like I said I'm no one to be talking. I will try to do better myself. I think I have a fear of getting to involved again. Seems like everytime I jump back in I get sick again. I'll take my chances though. I think I'll shut up now before I get myself in trouble. I'm good at that.

I pray you all have a painless day

love carol

I'm on kind of on the same page as Ginny and Pat.  I try to touch base on the forum periodically but life has been kind of crazy lately with my dad having open heart surgery and the weather has been absolutely gorgeous here in the south and after this horrible winter it feels good to be able to get outside and breathe in the fresh air.  I'm fortunate that the sun doesn't really affect me all that much so I've been doing what I call "flower therapy" by getting my spring beds planted and my deck in order.  Also, I agree that sometimes, even though we all have to live with this disease daily, we don't always want to be reminded about it and sometimes just need to have days that feel somewhat "normal".  But also, I understand that this website has been a godsend for me and feel very blessed to have all of you there to talk to and get advice from when I need it, and I will try to do a better job to respond to others when they have posted a problem or just want to rant. I hope you are feeling better these days.  Keep your chin up!!

Love,

Lynnette

DX - sle and carpal tunnel syndrome

RX - plaquenil, prednisone, lisiniprol, etolodac, darvocet when needed, hormones and daily vitamins

If this post did nothing else but give me a chance to here from my friends I haven't seen or heard from in awhile that works wonders for me. I swear I wasn't trying to point out anyone. Shoot I am having a hard time right now getting here. Doc put  me on  soma diazapam temazapam and 10mg vicodin. Gee I can't understand why I almost fell out of the shower head first this morning. Thank Goodness for the shower chair. My fog is real bad. they changed my effexor after 6 years to cymbalta to supposedly help with fibro which they aren't sure I have. I have blood test I need done first. I'm considering using my walker to get by until I get used to this stuff. anyway I'm trying to get here especially after I started this topic. I would sound like a hypocritite if I didn't . I am just a little slow at the moment.

sending blessings to you all

carol

Well considering I don't know where the mazda gascar is I probably won't be going there anytime soon.

I don't know what this ***P is but I don't like it. I just felt like I had a slight itch in my shoulder and and I rubed it slightly with my fingernail. It felt like someone just put a match to my skin. I don't understand it wasn't there and then now all the sudden I hurt. I don't even want to go to bed cuz I don't want to put pressure on my body. Man I got tears rolling down my cheeks. This just plain sucks! I swear I'd throw somthing if I didn't think I'd hurt myself.

hugs

carol