I am so glad you found us, and you will find you have so much in common with this forum. Maybe your dr's office staff just overlooked giving you an appt, so I would call them back and ask. Your symptoms sound so much like mine. I see a rheumy every 6 months, and am seeing my neuro again in two weeks. I am still falling quite abit and was newly diagnosed with degenerative arthritis, too. I am sorry you have to wait so long to see a specialist. Say what you will about HMOs and healthcare in the US, but I never even had to wait more than a few weeks for an MRI. On my first visit, he mentioned the possibility of a rare, but not unheard of dx. of Lupus and MS together, as my ataxia and falling are abit uncharacteristic, but he wanted to do a spinal tap since I didn't have plaque areas. I hope you didn't even hesitate to go to the ED And don't ever hesitate to go again! That's what they are for. One thing that I would recommend, is to start a diary of your symptoms, with time, date and circumstance. I use a dollar store planning calendar with big boxes. And ask for copies of all your records that would be important for the specialist to see, and put them in a notebook. Yes, the drs. will share records, but it gives you something to ask specific questions about. I called mine my misery log. And remember to take it with you whenever you need to go to the dr, or revisit the emergency dept. Tell the docs you are being evaluated for autoimmune disease and have a low platelet count history. It will immediately direct their thinking to what labs to order, and what serious things to look for. We are our own best advocate. In med school they teach lupus as "the great imitator" and the tv show House uses lupus as a story line frequently . Don't give up and don't despair, and keep us posted,
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.