Hi Jennifer, sadly yes it's quiet common. Some people stay in a state of flare forever. At least until you and doctor can come up with a good treatment plan. As much as you like your doctor (which is great) your pcp is no a rheumy. You need both. In fact you need several different doctors. Many of us are on steroids for life. The doctor just bumps up the dose if you are in a flare. Sort of like if you have allergies as long as you stay on your meds you do ok. stop taking them and you start sneezin and wheezin again. Just know that what is going on with you is not uncommon. You just need to be treated by a rheumy. Take notes tell them what you told us. Many people are on plaquenil which helps keep the flares away. You may not have to be on steroids forever but it sounds like you will have to be on something hang in there
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis.
"Consider it a pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." - James 1:2&3
Post Edited (okie) : 5/2/2010 8:34:36 AM (GMT-6)