b12 defiency

im awaiting on the results from my MMA test to see if i am indeed b12 def..normal b12 levels are 200-1100 but mine came back at 318 although its in range some people cane experience some symptoms between 200 and 400.. anyone take supplements or do you do the b12 shots...anything i should be concerned about regarding both

Long ago my rheumy suggested B12 and I've taken a chewable B12 supplement ever since....I don't think anyone has ever formally tested me for it, but I figured it couldn't hurt!

Cheers,

Amy,

I've been thinking about you, how did your sinus surgery go?

sinus surgery went great... not too much pain the worse part was the drainage... but im still slightly stuffy but other than that i feel like i can breathe better..and they put in a septal button from where lupus ate away at my spetum...something like vascultitis or just connective tissue issue thanks for asking...
i find out b12 tomorrow

Amy,

I'm so happy to hear that your surgery went well. Hopefully you'll continue to improve until you can breath well again.

Strange story. Until 2 years ago we had a rescue dog named Sister. Many years ago she developed a hole in her septum and the vet performed biopsies, which came back negative, on a yearly basis. We finally sent her to a veterinary school where she was diagnosed with lupus. I never did understand why or how the lupus chose to attack that tissue. She eventually healed but always had the hole.

Hi amy I guess it depends on the lab you use but  my doctor started me off on b12 shots 1 time a week for 4 weeks. and maricle happened My rates got worse . Igot a letter from her friday asking me if I was even taking my shots. Now they are supposed to be once a month for life but I guess we will see what she says when I tell her I do take shots.

hugs

carol

Hi! Everyone,

Just saw neuro, rheumy and primary all within 2 weeks and had a pulmonary consult, too. Such fun! My B12 was found to be 130 and the neuro said that was very seriously low, better @500, and that it is vital to your nervous system. He explained I did not have pernicious anemia as my cbc was ok, and explained that I am probably making autoantibodies against the intrinsic factor because of my autoimmune disease. Said primary should follow up and that I would most likely need a shot, and then even a repeat injection in two weeks.... rheumy called, they don't have b12 to give, he said I would get a shot from primary asap, primary said... take 1000mcgs orally every day for a month and repeat the blood test. Rheumy said why are you taking the pills instead of a shot??? I said because MY PRIMARY SAID TO!.. so then I looked for some studies comparing oral to injected... found two recent, (2009 and 2008) that suggested after a controlled study, that high doses of oral b12 demonstrated similar good effect to IM injections, at less cost and greater pt. satisfaction. So...... since I was flaring so badly, I took 2500 mcgs under my tongue for a week, ( I bought them because they were cherry flavored and then dropped down to 1000 mcgs untill I get my level rechecked. I looked it up in a drug book, and on the Mayo clinic help site, and was reassured that high doses of B12 aren't really toxic. I just wish I could find vit/min tablets smaller than horse pills....

hugs, suetoo

I have Pernicious Anaemia amongst other Auto Immune conditions. I used to have Hydroxocobalamin injections every 12 weeks, which really helped but I joined the Pernicious Anaemia Society on line and discovered a lot of information from there. One of the Moderators negotiated with BigVits a 10% discount when certain Vitamins related to PA, or B12 deficiency were bought by our members. I can highly recommend Jarrow's Methyl B12, which comes in 1000mcg and 5000mcg. To get the best results, it is advised to keep the tablet under your tongue for as long as possible.
iherb.com and prohealth.com also sell vitamin B12 tablets. I think if you google B12-Extreme, it is the only B12 vitamin which has all four types of B12 but is very expensive.
Sorry, this sounds a bit garbled but I'm passionate about sharing information with other sufferers.

Years back, I had a B12 defiency dangerously low as doctor put it. I had to get weekly shots as well as take two pills for it. Every few months, I have to get bloodwork to check to see where it is at now. I had no probems with the shots or pills, and my insurance covered the shots, but didn't the pills (go figure lol).