does lupus run in families???

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Regular Member

Date Joined Mar 2010
Total Posts : 20
   Posted 5/12/2010 11:54 PM (GMT -6)   
Hi all
I'm still waiting to see the specialist to find out whether or not I have lupus but I just found out that my niece (who I haven't seen in years) was diagnosed with Lupus about 5 years ago. She's doing really well. Happily married with 2 boys & a full time job. 
I realise Lupus is not hereditary but was just wondering if it runs in families.

Regular Member

Date Joined Jun 2008
Total Posts : 363
   Posted 5/13/2010 3:48 PM (GMT -6)   
I've read that they believe Lupus to be hereditary through the maternal side of the family. Unfortunately, I was adopted and have no medical history on my birth mother's history. I believe that it is general autoimmune conditions. Say someones grandmother had Chrohns, then an Aunt had RA, a sister had Lupus and you could be totally healthy. You never know how it might work out. But I have heard there is some kind of genetic link. You may want to try and Google it.


Taking plaquenil, atenelol,  Flexeril, Claritin, Zantac ,Trazadone, Ambien, Prednisone 5mg, super B complex, multi- vitamin, folic acid, 15mg er morphine twice a day and Lortab 10 3-4 times a day, Imitrex for migraines.  Allergic to all NSAID's and Ultram.   Mom of 2 boys 2 1/2 and 7.  Symptoms: Fatigue, joint pain and swelling,Raynauds,numbness,tingling,weakness, heat/sun sensitivity, mouth and nose sores, malar rash, migraines, awful hives, positive ANA, with speckled pattern, positive RF, negative anti-DSDNA, and positive for Sjorgen's Syndrome.



New Member

Date Joined Jun 2009
Total Posts : 10
   Posted 5/13/2010 6:13 PM (GMT -6)   
When I went to my rhuem. the last time I told him my Dad has luekemia. He wanted to know what type. I told him CLL and he said there was my link- there is a genetic relationship. I had no idea that the 2 were connected.
lupus, sjogren's

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 5/13/2010 11:56 PM (GMT -6)   
Hi Tibby,
I had an Aunt and a cousin with Lupus on my dad's side of the family. I just hope none of my children or grandchildren get it.


Regular Member

Date Joined Mar 2010
Total Posts : 20
   Posted 5/14/2010 10:25 AM (GMT -6)   
Thanks guys

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 5/14/2010 1:35 PM (GMT -6)   
Hey Tibby! Since this month is Lupus awareness month, the Lupus Foundation of America is sending out Daily Facts about lupus. Daily Fact # 13, from the Lupus Foundation says

"Only ten percent of people with lupus will have a close relative who already has lupus or may develop lupus. Some people with lupus also will have a relative who has lupus or another autoimmune disease."

Veteran Member

Date Joined Jan 2007
Total Posts : 2446
   Posted 5/19/2010 2:32 PM (GMT -6)   
No, it's not genetic of hereditary.

Veteran Member

Date Joined May 2005
Total Posts : 7720
   Posted 5/19/2010 4:09 PM (GMT -6)   
Lupus Foundation of America said...
No one knows what causes lupus. Scientists think that people are born with the genes to develop lupus and that something brings on or "triggers" the disease and symptoms. However, a combination of genetics (heredity), environment, and hormones is involved.
Note "scientists think" means that there are no official studies to prove or disprove this statement, and basically the answer is "we just don't know".

Some of you may observe trends of auto-immune diseases in your families or friends families, but until I see a study otherwise, I'm trusting the Lupus Foundation!!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

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