Bekkah, you're right. You're too young to be feeling this way! I'm so sorry you're having to go to summer school because summer would be a great time for you to get lots and lots of rest. I'm sorry soccer has become so painful for you. If you improve and find that you can play soccer again, you might think about indoor soccer so that you can stay out of the sun. In fact, the sun may be one of the things that makes it so painful.
Find someone to talk to. A therapist, clergy, or someone that can help you. It's so hard for the average person, especially kids your age, to understand what you're going through and most people don't really want to hear about it, but you need someone to talk to and someone who can understand you and help you. My therapist is real good at listening to me vent, but even more important, when I'm feeling worse, she always tries to get me to figure out what I might have done to bring on a flare. Now I'm a lot more thoughtful about what I do.
Don't give up. I was in a bad 6 year flare and I have been coming out of it for about six months now. Starting to feel almost normal again. So try to stay positive because there can be life after lupus.
Keep your chin up and stick around here more. We really do understand. It sucks. And it would suck a hundred times more to have lupus at 15 than at 60!
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.
plaquenil, neurontin, synthroid, triamterene, actonel, niaspan, lunesta, cymbalta, vitamin D, Calcium, Multi Vit.