You are wrestling to understand auto immune diseases like all of us did at first. They are not like other diseases and patients often have more than one. The nature of an immune system gone crazy makes it difficult to predict how any case will progress and uctd is a catchall diagnosis when they know you have it but the symptoms are not clearly defined. MCTD is clearly defined but if you have read some of the posts many doctors are not clear on what it is.
Hang in there and hope your treatment will work but don't be surprised if you need more aggressive treatment. In the meantime remember that you are sick and try to cut back on your activities and stress if you can. As the father of 4 grown kids I know how hectic it can be in a young family so it is easier said than done. Enlist your husband to help as much as he can.
These diseases are usually treatable but some cases are more stubborn than others. I have gone from a quadriplegic state in Dec 2005 to an active life again. Just finished playing golf (not very well) and carrying my own bag for 9 holes. I ski and work out several times a week and life is good again but in my case which was very extreme and unusual it was a long battle. Take things a day at a time and don't project into the future. My time frame when things were really bad was 1 hour and somehow I got through the nightmare.
MCTD (lupus, scleroderma, polymyositis). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005. Recovered and now active in skiing, tai, chi, hiking, golf. Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.