Burning up inside, is this part of the disease? MCTD?

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Veteran Member

Date Joined Dec 2005
Total Posts : 1950
   Posted 6/28/2010 1:35 AM (GMT -6)   
Hope you are all well as can be. I don't know what this new problem is.
I get spells when I'm really sick to my stomach, I don't remember if they coincide with sun exposure, I don't think so but can't say for sue. It feels like my deep tissues are hot and burning. My skin may or maynot be hot to the touch. My whole body feels like its burning, sometimes my forehead will feel hot but oral temp is low. Aspirin type fever stuff doesn't help. I just lay down and let it pass. Water may help.
I was wondering if this has to do wth MCTD because my mom has been dx with that and my arms are really hard now, my rheumie hasn't seem them yet and other problems. Its a horrible feeling but doesnt happen continously, just maybe for an hour or a few hours, then itgets better then it comes back. I thought it was from the spinal infection but they say I don't have one, nothing grew in the culture, that Ijust have some kind of extremely severe degenerative disease. Thats another reason Iwondered about MCTD, they blame my moms spine on it.
Thanks in advance for any help you can give.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

Regular Member

Date Joined Aug 2010
Total Posts : 124
   Posted 8/19/2010 2:37 PM (GMT -6)   
I have been dx with MCTD and for the last 5 months at least, I can't get cold. I am hot all the time. It is worse if I get into the sun or humidity. But even in my house, with the AC blowing ice chunks under a fan with a wet shirt on while eating ice; I'm still hot. I freeze my husband and kids out. I was always the one freezing but not in the last few months. I haven't had a chance to see my dr for a few months but that is one of my first questions for him. Sorry I don't have any advice but you are not alone in your fire. If I find out anything I will let you know. Please do the same.
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