10 year old with dual ana pattern

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cgray10
New Member


Date Joined May 2010
Total Posts : 5
   Posted 7/11/2010 5:59 PM (GMT -7)   
Hi...I have a ton of questions but one that I would love some insight on is about my daughter having a dual ana pattern. She has a speckled pattern 1:1280 and a centromere pattern 1:640. Any ideas of what this could mean?
She has had alot going on...just recently in hospital diagnosed with hemicrania continua. Joint pains , days of virus type symptoms, blood in urine/stool to name a few things. We are waiting to see a rheumatologist and nephrologist...so any insight on this would be greatly appreciated. Thanks :)

cgray10
New Member


Date Joined May 2010
Total Posts : 5
   Posted 7/12/2010 4:45 AM (GMT -7)   
OK...is there not anyone that has an idea about a dual speckled and centromere patteren? Maybe that is why I can't find any info on it? HELP :)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7519
   Posted 7/12/2010 7:24 AM (GMT -7)   
Well, I've been reading every post in this forum for several years, and I can't recall any mention of a "centromere" pattern. So maybe it's very rare or something? Could they have given you incorrect information?

Please let us know what you find out so we can be better informed in the future!

I hope your daughter feels better soon,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7519
   Posted 7/12/2010 7:29 AM (GMT -7)   
Oh - I did find Centromere Pattern: Seen in PSS with CREST syndrome (scleroderma is usually the main part of CREST)
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


cgray10
New Member


Date Joined May 2010
Total Posts : 5
   Posted 7/12/2010 8:19 AM (GMT -7)   
From what I have been reading the centromere pattern is pretty specific for CREST....but speckled could mean several things. Would this be more leaning toward a connective tissue disorder or maybe have lupus & CREST??? Sorry, this whole thing confuses me :(

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7519
   Posted 7/12/2010 8:40 AM (GMT -7)   
en.wikipedia.org/wiki/Scleroderma & Lupus are auto-immune disorders. Most of the auto-immune disorders have overlapping symptoms, and there are no clear single tests that determine one or the other -- it's more like "choose the group of symptoms that most likely match X", where X is the diagnosis they decide is best fit.

The diagnosis is NOT the most necessary part of the problem -- controlling symptoms IS. And, like I said, the symptoms overlap....or just make sure your dr is symptom-oriented, and everything will work out. If you have a dr that insists on a firm DX *before* treatment -- get another opinion!!!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde


jdrea
Regular Member


Date Joined Aug 2010
Total Posts : 124
   Posted 8/17/2010 7:02 AM (GMT -7)   
I'm very sorry to hear abour your daughter. I will pray for her and your family. It is hard to have a sick child. I agree with Lynnwood. It is hard to get a definate DX with autoimmune diseases because so many overlap. My pattern is speckled and I am still trying to get a straight answer. Take care and ttry to enjoy each day, the best I can, is how I face each day.
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