I am not sun sensitive (I think the stats are about 40% of lupers) so using sun block (neutrogena) works fine for me. Played golf on Tuesday and was out in the sun for 6 hours without a problem.
My case was extreme and complicated. Lupus hit me hard but polymyositis crippled me.....I was a quad and could not swallow. As far as I have determined no one has ever recovered from such an extreme loss of muscle (40 lbs in a week). Even so, I have probably lost 35-40% of my muscle cells so what has come back is the remaining 60-65%.
Some people who are sun sensitive do manage with sun protective clothing and sun block but others react to almost any sun exposure. I was lucky that was not one of my problems since I hike, play golf, and ski.
MCTD (lupus, scleroderma, polymyositis). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005. Recovered and now active in skiing, tai, chi, hiking, golf. Meds: prednisone 2.5mg, imuran 25mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.