Pain in hands and feet

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New Member

Date Joined Jul 2010
Total Posts : 6
   Posted 7/20/2010 7:38 PM (GMT -6)   
Hey everyone,
I'm 19 years old, and I was diagnosed with Lupus about a month ago.
They put me on plaquenil, which was very hard on my system. The doctor took me off it and asked that I wait two weeks and try going back on. Since I went off, it's been hell! My migraines started coming back, I started having arthritis-like pain in my neck, I've been exhausted, I got one of the worst rashes of my life all over my body. But the worst is this pain in my hands and feet that I started getting about 4 days ago. It started in my fingertips and toes, but has spread to my whole hands and feet, and is making it's way up my arms and legs now. It's a hard feeling to explain, it's almost like pins and needles, but it's not numb or cold. It's more warm and burning. (It's like when you high-five someone WAY too hard, that instant of pain you get! Or when you were a kid and you jumped off the monkey-bars, that shock that went through your feet!!) It's to the point now where I can barely hold things in my hands and it hurts to walk. I can't rest my hands or arms on anything either without extreme pain. My fingers aren't swollen, and they don't feel stiff...just very sore.
I haven't gone in to see my doctor about this yet because I've already been in to see him 3 times in the last 2 weeks...enough is enough!!
So I was wondering, has anyone else had symptoms like this?

Thanks for your help!!

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 7/21/2010 7:07 AM (GMT -6)   
Welcome to our forum Avrilsch. Rheumatologists are the docs who treat lupus, so I hope you're seeing one. Don't worry about seeing your doc so often. I did too at first. You simply don't know what to expect, treatment, etc. After a couple of years (yes, years) you become good at knowing when to treat yourself and when to see the doc. I hope your doc gives you some good pain meds. There are lots of prescription drugs that are non-narcotic and some good over the counter (I take Arthristis Tylenol). Your pain sounds just awful and you sure need something that helps.
Many of us own The Lupus Book by Daniel Wallace. Lots of great info. You can find it on Amazon. Take care Sweetie and let us know how you're doing. Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

New Member

Date Joined Jul 2010
Total Posts : 6
   Posted 7/22/2010 8:41 PM (GMT -6)   
Thanks for the reply butterflake,

I do have a Rheumatologist, but my experiences with him have been awful so far. I am currently being referred to a different Rheumatologist that I have heard is the go-to guy for Lupus. Fingers crossed that he can help me!!
Right now, the only drug I have is Naproxen, an anti-inflammatory given to me months ago for my occasional wrist pain. In a few weeks, my doc will be starting me back on Plaquenil.
Since I posted two days ago, things have gotten worse. I'm at the point now where I can barely move around. Gripping/opening things is nearly impossible, and even reaching for the phone brings a wave of pain. I find that it's worse when I just sit around, but the pain makes it hard to WANT to get up and do things, as I'm sure everyone here knows. I'm going to go to the store tomorrow and pick up some Tylenol Arthritis and give that a shot over the weekend.
I've ordered "The Lupus recovery diet" by Jill Harrington. I'm willing to try anything!!!

Thanks for the support :)

Regular Member

Date Joined Aug 2010
Total Posts : 124
   Posted 8/19/2010 2:10 PM (GMT -6)   
I am sorry to hear that you are feeling so rough. I hope that your dr can get you back on your feet asap.

Regular Member

Date Joined Feb 2010
Total Posts : 138
   Posted 8/19/2010 6:55 PM (GMT -6)   
 I think I would be in the ER at this point. That's just me though. Keep us updated (((HUGS))) oops sorry
Cymbalta,tramadol,tylonol 4, nexium,verapamil,325 mils of asprin,multi vit,duloxetine hcl,vit D,vit b-6, and simvastatin

High blood pressure,high cholesterol, Carpel tunnel synd,acid reflux,insomnia,fibromialgia, High ANA possibliy Lupus ( no diagnoses) Vitamin D defficient, arthritis in most of my joints.
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