Just got my old medical records back with test results going to new DR

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Date Joined Jul 2010
Total Posts : 468
   Posted 7/23/2010 2:04 PM (GMT -6)   

My test showed  I had a ANA Band of 1:160 and that I tested positive.


Also the test showed the SSA and SSB antibodies were observed with the highest frequency  in Sjorgens syndrome and with in patients with SLE.


I had no idea what Sjorgen syndrome was but I looked up symptoms and I do have some. My eyes are very very dry all the time, I actually have to sometimes open my eyes myself by using my fingers because they are so dry they cannot open on their own. Also sometimes when I drink a lot I’m still thirsty and I have very dry skin. I always contributed this to allergies and eczema. When I had all this testing done my DR never mentioned anything about Sjorgen syndrome.


I guess it is time to make an appt with another doctor I am still scared though. Thanks everyone who replied to or read my first post :-)

Post Edited (LAWCHICK) : 7/23/2010 1:21:38 PM (GMT-6)

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Date Joined Sep 2005
Total Posts : 2573
   Posted 7/23/2010 3:07 PM (GMT -6)   
sounds like you really need to see a good rheumy about all of this. Make sure whoever you see is a lupus specialist not all rheumys are.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

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Date Joined Jun 2006
Total Posts : 1650
   Posted 7/24/2010 9:08 AM (GMT -6)   
Hi Lawchick. Redrose is right that your rheumatologist treats lupus, sjogrens, fibromyalgia, arthritis, lupus CNS, and more. I know cause I have all these. My sjogrens pet peeve is when I'm talking and my lips stick to my teeth. Dental issues are a big problem with sjogrens cause without enough saliva bacteria stick to the teeth. I use OTC Biotene toothpaste, non-alcohol mouthwash, oral balance gel at night and good OTC eyedrops. Healing Well has a sjogrens topic you may want to check out.  Love, Butterflake
Systemic Lupus ('05), depression, fibro, sjogrens, cns issues, diabetes, gerd, hypertension, colitis, stage 1 kidney disease. Cellcept and lots of other meds.  Donna 

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