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New Member

Date Joined Jul 2010
Total Posts : 9
   Posted 7/25/2010 9:29 PM (GMT -6)   
I need some help I've been up since 9am yesterday & my body is exhausted but my mind won't let me fall asleep it's wide awake & I need some help finding a method to help me sleep any ideas ... 

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 7/26/2010 8:36 AM (GMT -6)   
Lots of insomnia on this board for sure.

I had problems for years with insomnia, but am sleeping very well now. I really wonder if the insomnia is part of the disease activity.

Anyway . . . things that help me:

I knit - which is super therapeutic.

I also listen to books on CD. I go to the library and bring home 5 at a time. I'm using a personal CD player, so it use ear buds can listen in bed without disturbing DH. I generally don't hear more than 5 minutes and I'm sound asleep. I can't believe how well that works for me.

In colder weather, I leave the room temperature very low and use nice heavy blankets and electric blanket (mine is designed to be the bed pad under the sheet, so I'm lying on it).

Try the "Thank Alphabet" . . . Think of something you are thankful for, beginning with "A" and work your way through the alphabet. If you make it all the way through to "Z" . . . then start the alphabet over again thinking of an animal that begins with "A" after you get to Z, just make up a new category (countries, colors, plants, etc.) I used the Thank Alphabet when I was having horrible insomnia and I never got through the alphabet a third time.

I hope some of the others have some good suggestions too.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 7/26/2010 9:05 PM (GMT -6)   
Hi wolf, I'm sorry you are going through that. I know it's awful. I think I would rather have almost anything but insomnia. I went for 5 days a couple months ago I thought I was going insane. I finally went to urgent care because it was over memorial weekend. They gave me ambian. I was so tired it put me to sleep pretty fast. But that was the one and only time it ever worked. Do you take meds? they aren't listed. Certain meds can keep you awake. especially steroids. Now I am back on xanax, soma, and a sleeping pill. I've actually taken myself off of the doses she put me on because I was a zombie next day. usually once the insomonia is broken it stays broekn for awhile. Maybe you should ask your doctor for maybe 5 pills or somthing. You really don't need to let your body get down any further then it is. I flipped and flopped so much my hands and feet were raw! Don't let it go that long. for home remedies you can try warm milk. not chocolate. herb tea like sleepy time or chamomile. warm bath, soft music better without words so you don't start thinking about the words. Rosie is right insomenia does come with the terroritory. Anxiety is part of the disease. If you havn't slept please call your doctor and tell them you can't stand it other wise they won't take insomenia seriously.
let us know
nexium,temazepam,predisone,plaquenil,propanalol,citracal,pottasium, vitB12 ,iron,xopenex,advair,spirivia,soma,Vitamin D, cybalta
Dx lupus, scleroderma, pos. fibro, high blood pressure. COPD, need left lung transplant. cervical cancer survivor, osteoporsis
Jesus is a friend of mine
We come into this world crying while all around us are smiling. May we so live that we go out of this world smiling while everybody around us is weeping.

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 7/26/2010 10:36 PM (GMT -6)   
benedrill can help sometimes
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence

New Member

Date Joined Jul 2010
Total Posts : 6
   Posted 8/1/2010 4:50 PM (GMT -6)   
 Sorry to heat things aren't going so well at the moment, but I was pleased to read what you said I've been suffering the same problem on and off for six months now thought i was going crazy, was absolutely exhausted but couldn't sleep. Doc gave me some sleeping tablets to take only when I was feeling desperate, seems to be working at the moment Looks like it could be yet another side effect of Lupus. Also have a lot of bouts of confusion at the moment can't remember the names of things and how to spell. I'm finding it extremely embrassing especially as I was always the one people came to when they wanted to know how to spell something. Does anyone know how to cope with this problem would appreciate any help I can get Thanks keep well.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 8/1/2010 8:29 PM (GMT -6)   
My doctor has me on Ambien CR daily. He swears (and I agree) that the need for sleep is even more important than the risk of dependency. I know that since I sleep 8-10 hours a night, my lupus has been quieter. I hope you feel better, and I would definitely talk to your doctor. You need to rest!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Regular Member

Date Joined Aug 2010
Total Posts : 124
   Posted 8/14/2010 10:36 PM (GMT -6)   
I hardly ever sleep. I go thru the motions and then I realize that I am laying there and my mind won't shut up. I joking tell my family that I have decided to name my little voice, that navigates around my head all night yacking and refusing to let my mind slow down, Maurice. It reminds me of the Lemur king off of Madagascar. I joke about it but it does drive me crazy when I haven't slept in a week or two for more than an hour or two a night. I'm not crazy, but I have decided that if I don't make a joke of it, then I might go crazy. One thing that I have found is that a cool shower and a cup of hot chocolate seems to help me unwind and sometimes I will be able to sleep for a few hours before I'm awaken by Maurice or my bladder. Sometimes, I joking talk to Maurice, (really I'm not crazy), and then the next thing I know I wake up and it is morning.
My Md laughed at me and said,"so you're mind is like a 3 year old, talk to it for a few minutes and it will run off to play somewhere else." I guess that that is one way to look at it. At least it is funny. It doesn't always work though.
Good luck and I wish you lots of restful sleep.
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