I too have not been on in sometime, I hope everyone is doing well. Since starting cellcept in December I have been feeling fairly well and haven't been on the computer quite as much as I have been able to get out and do things a bit more. Well, Saturday we had my God daughter's birthday party at our pool and since I had been feeling so good I stayed out too long and over did it. I have been able to spend limited time in the pool this season, but I always take precautions, plenty of sunscreen, don't go out in peak hours when the sun is intense, wear silly hats while swimming, you get my point. But for some reason I thought I was super woman on Saturday, I stayed in the pool with the kids the entire time and while I used sunscreen I didn't want to wear my silly hat in front of people whom I didn't know. The kids were having so much fun a lot of folks ended up staying several hours later. I guess what fooled me is it was a fairly cloudy day (trust me I know better as the UV rays are just as intense with clouds), but I was having such a good time and actually had a few hours of feeling "normal".
By Saturday night I had a headache coming on, then I woke up yesterday morning with a horrible sore throat, massive pain in my chest, mainly right rib cage and simply have no energy! One would think after living with this crazy disease for over 14 years I would learn, but that feeling of "normalcy" still draws me in every now and then. So, not only is my body rebeling from my outting but I'm in a bit of a funk as well as I was quickly thrown back into what has become my reality of limitations. Sorry, didn't mean to come here and whine, just needed to let my frustration out! My family is super supportive, but when I do things like this they always say "you know better why did you stay out there?" Things of this nature. I know you all can relate where they can't in this situation as they have no idea how badly I just want to live a normal life and be able to do things without having to pay the consquences later, like any other person my age.
So, here I sit in bed, unable to do much feeling sorry for myself once again! I hate pitty parties, but it seems I'm throwing myself one today!
Lupus - 1997 Fibro - 2001 Sjorens - 2007 Raynauds - 2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis