Thank you so much for the prayers and well wishes. I am feeling much better now. I am still in my wheelchair because my legs are still shaky and exerting myself too much takes my breath away. My hubby could not be any more supportive, he cooks, cleans, does laundry and anything else I can't manage. He does encourage me to do what I can. I wouldn't have made it in the hospital without him-he stayed with me day and night and made sure I got my meds on time-to the point where he actually lost his job because he wouldn't leave me. (He has a better job now). I know I am very fortunate to have him.
Carol, they say I may have to have a transplant one day, which scares me half to death. I was told to just let them know when I was ready and we'd talk about it. My family and hubby's family are very supportive and say they will back me up on my decision, whatever it is. What worries me is what if the transplant surgery triggers my MCTD to attack other organs? As it is now, I am on oxygen (2 liters) 24/7 and my pulmonologist says that's pretty much permanent at this point.
Thanks for reading
Hot tea and gentle hugs to all
MCTD (SLE, Scleraderma, polymyocitis), Reynaud's, Hypo-Thyroidism, Pericardial Effusion/pericarditis, Irregular heartbeat, Hiatal hernia.
Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Imuran, Crestor,Toprol, 81mg Aspirin, Vitamin D, Vitamin C, Multivitamin, Extra Strength Tylenol, Flexeril, Vicodin.