I have the same sun sensitivity. I do not have Lupus, I have fibro and RA. I don't know if it is related to the meds I am on or not. If I am in direct sunlight, it feels like my skin is burning even though it is not warm to the touch. Something that helped was putting a damp paper towel in the freeezer for a few minutes and then holding it on my skin. The coolness helped.
This is a new symptom for me, I don't think I had this last year. I have a big straw hat I wear and I bought a white long-sleeved zip-up hoodie to wear in the car. Even if I am in the car and the sun is shining on me it will start to hurt! It's been really hard this summer because my kids want to go to the pool a lot and I don't want to be out in the sun!
I just found out about a type of sunscreen for sun-sensitive people called Anthelios or something. Have you ever heard of it?
Diagnoses: Depression/Anxiety, PTSD, Hypothyroidsim, High Blood Pressure, Fibromyalgia, Raynaud's, Rheumatoid Arthritis, Osteoarthritis, Sjogren's
Meds: Celexa (once a day), Buspar (2x a day), Levoxyl (once a day), Metoprolol (once a day), Lyrica (3x a day), Plaquenil (2 times day), Clonazepam to help me sleep for the moment until I find something else.
Allergic to: Sulfa, Ceftin, Augmentin, and Synthroid (probably the filler).