So I know some of you know I am very new to lupus and recently started plaquenil. Well my original appointment to even see this rheumatologist was almost 6 months. Spent very little time with her - then she ordered the tests, made the diagnosis, started me on plaquenil, said to call her in a month and she'd see me in 5 months.
So - when we heard the wait was 6 months, my regular doctor ran a bunch of tests and discovered my Fibro and CFIDS (which the rheumatologist confirmed as well). Now she asked for an appointment this week where she told me to have them set aside 30 minutes (the normal appt time is 10 minutes). I'm 26 and this doctor has been treating me sine I was about 7 years old. I've been through chronic tonsillitis, a tonsillectomy, knee surgery, chronic sinusitis, adrenalectomy, gallbladder surgery, appendectomy, ulcers, cysts, IC, IBS, chronic kidney infections, heart murmur, severe migraines, etc. all with her.
Now my question for you is where did your doctors start...and did your PCP get involved? I understand this medicine can take a while to kick in but this rheumatologist doesn't know the amount of heart/kidney, etc. problems and pain I've already had for the last 18 or so years and if there are tests I can do now instead of later I'd like to get them done...all of them that I may need since I didn't start on any other meds. IF i can prevent anything - and this doctor knows the most about me - should I suggest getting some testing done, which I'm pretty sure shes going to suggest anyway, or just leave it up to the rheumy and wait? How did you guys start out...just waiting? Or were you proactive? I'm not very good at sitting around if there's more I could be doing...especially to help my organs..
Thanks so much!