you need a second opinion, simply put you need to find another rheumy and get their opinion but make sure they are a lupus specialist before you see them. Also may I suggest and Immunologist and an infectious disease specialist just to be safe. You have inflammation as evidenced by your blood work which means all is not well. Now you need a doctor who will listen to your symptoms and forget about other blood work for the moment as they figure out how to get the inflammation under control and find the underlying cause. I nearly died being told there was nothing wrong with me because I didn't even have inflammation markers in my blood work. I got lucky and saw the right doctor on the right day and she saw all the signs and looked at my medical history and dxed me on the spot and immediately began treatment. But that was after more than 14 years of being told it was all in my head. I wish you lived near me because then I could give you the names of a few doctors who I know would care enough to try and figure out what is wrong with you. I live in southeastern Michigan. I haven't met many people in my area with problems like mine.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Vicodine when things get too bad, prednisone again, various vitamin/mineral supplements, cozar, duragesic patches
"Those who dream by night in the dusty recesses of their minds wake in the day to find that it was vanity: but the dreamers of the day are dangerous men, for they may act their dreams with open eyes, to make it possible." T. E. Lawrence