Well, this is my first time posting in this forum (new member). Maybe you would like to know my story...I am a 26 year old mother and wife diagnosed with Lupus. Two years ago, I became ill, thinking it was the common flu, I went to the doctor to get some antibiotics. The visit did not quite go as well as I had planned. I could barely breathe, my chest felt like I had the world on it, my feet and hands (even ears and nose) were blue, I had a rash on my arms and legs, my joints were in constant pain, I had a headache that I just managed to live with, and I was in for a rude awakening! The doctor looked at me and asked if I had Lupus...what is that? I was soon educated! I was shuffled between labs (I think every vampire in the hospital had a vile of blood!), and I was sent to consult with a rheumotologist. After a month of feeling awful, I was finally able to function again. I put Lupus on the back burner, and quit going to see my doctor regularly<--Big mistake.
Well, this past week, all the symptoms have been revived. I went to my doctor today...and here I am again, facing the demon that is inside my body attacking it. I became angry, very angry. At times I feel left behind. I WANT to hang out with my friends like I use to, go sit in the sun for hours, enjoy the cold weather, play without getting tired, be intimate....enjoy life. I gets hard seeing those healthy around me. Do I want to take medications everyday? No!
Although I get angry at times, I have found Lupus is my biggest strength. It does not dictate who I am, it is just a small being that I must live with. It has pushed me to accomplish things never thought I would do. I am now finishing my Bachelors in Business and being the best Mother and Wife I can be.
It is hard living day to day not knowing how my joints will feel and not being able to make long term plans, however, I have love and support.
I am going to live, love, and laugh....however, there is an extra L I must live with....Lupus....It is not who I am or what I am...it is just a small particle that gets in the way at times!