How do you react when you get the OMG sad look when someone finds out your dx?

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Regular Member

Date Joined Aug 2010
Total Posts : 124
   Posted 8/16/2010 4:20 PM (GMT -6)   
I have MCTD and it drives me crazy when a dr or, for that matter anyone, who knows what MCTD is gives you the look like you are almost dead?  And then it is usually accompanied by "I'm so sorry".  True some days I feel like I'm almost dead but I am not ready to give up.  Any ideas of a good, even humorous, come back for that one?
I'm still me, I am not the disease....

Regular Member

Date Joined Oct 2003
Total Posts : 495
   Posted 8/20/2010 4:09 PM (GMT -6)   
Sorry to hear that jdrea. For me most people tell me that they know someone with it. Just let their looks go, don't worry about them.
If, it si a doctor they most know, but anyone else.....just tell them you are doing ok....or that you have had better days. I had a friend that was dying. When ever someone asked his reply was "okay", "good" or "well". He once told me that people don't really want to know how he is doing. That they don't want to hear "I am dying"

That is one thing I can tell you about this site.....people CARE!!!! and CARE alot.
Enjoy what you can today and leave the rest for another day.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 8/20/2010 11:43 PM (GMT -6)   
How about responding to "I'm so sorry" with "so am I". Honestly, most people mean well but they are unsure what to say. Come here and vent - it will make you feel better!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.
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